Contact CamRARE

Contact CamRARE

Montage of photos from the event including views of the panel on stage, audience members and workshops
Cambridge Rare Disease Network - RAREsummit25 | Review 1

We celebrated CamRARE’s 10th anniversary in style, as 262 delegates gathered at the Wellcome Genome Campus on 6 November for RAREsummit25, marking a decade of progress, partnership, and purpose in the rare disease community.

The highlights film below captures the buzz of the day – from dynamic keynotes, powerful patient stories and cutting-edge panel discussions to spontaneous conversations between researchers, clinicians, industry leaders, policy-makers and advocates all united by shared experiences and ambition. Across sessions that showcased breakthrough collaborations, emerging innovations and deep reflections on lived experience, one message echoed throughout the day: real progress happens when partnerships endure, and the rare disease community comes together to learn, connect and co-create solutions that matter.

Revisit or Catch Up

Soak in the atmosphere of the day in our short highlights film.
Keep an eye on our YouTube channel & blog pages as we’ll be releasing session videos and spotlight blog posts over the coming weeks.
View our YouTube Playlist
Highlights Blog

With thanks to Ceres Productions for the event videography

RAREsummit25 in numbers

262 attendees. Including 54% patients and patient groups, 21% academic, 19% Industry, 5% Healthcare
50 speakers, 6 workshops, 25 exhibition stands, 25 posters
100% of attendees rated Rare Summit 25 as great or good

Testimonials

Click on the quote box to view the full testimonial on YouTube
It’s been inspiring to see things taken to the next level just by starting off by being a passionate parent. It gives us hope that we can progress as well.
Stacey McGeown

EquiPath Analytics

It’s really important to bring the rare community together in places such as the rare summit to give everyone an opportunity to voice their challenges, their concerns, and their needs.
Will Harrison

Cambridge Cognition

I don’t think we can divorce physical from mental health. So it just seems logical that we’d have mental health threaded throughout the event.
Lauren Roberts

Rareminds

Event Programme

To see the full agenda and find out about speakers, exhibitors and sponsors, view or download the RAREsummit25 programme by clicking on the cover image below.
RAREsummit21 delegate handbook front cover

Poster Gallery

25 research and patient journey posters were showcased at RAREsummit25, bringing the conference centre walls to life. Click the photo to view the online poster gallery.
Cambridge Rare Disease Network - RAREsummit25 | Review 2

Photo Gallery

With thanks to Jeremy Peters & PH&B for the official event photography

Photograph of the Legacy in Action panel sitting on stage at Rare Summit 25
Photo looking down from above at people sitting in the auditorium with their programme books on the ledge in front of them
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Sponsors

A huge thank you to our sponsors, grant funders & donors for their invaluable support for RAREsummit25

Alexion logo
Life Arc logo
Kyowa Kirin logo
Healx logo
Amicus