28 / 100 SEO Score

Educational fims

All of these films were submitted to us as part of

From RAREfest18

AN INTRODUCTION TO CEREBROSPINAL FLUID LEAKS

CSF Leak Association

Cambridge Rare Disease Network - CRDN | Resources | Educational films 1

PITT HOPKINS SYNDROME AWARENESS DAY

Pitt Hopkins UK

Cambridge Rare Disease Network - CRDN | Resources | Educational films 2

G03.9 ADHESIVE ARACHNOIDITIS

Arachnoiditis International

Cambridge Rare Disease Network - CRDN | Resources | Educational films 3

TESS IS NOT ALONE: A USP7 STORY

Foundation for USP7-Related Diseases

Cambridge Rare Disease Network - CRDN | Resources | Educational films 4

MAL DE DEBARQUEMENT SYNDROME. IGNORANCE ISN’T BLISS

House4balance

Cambridge Rare Disease Network - CRDN | Resources | Educational films 5

MENKES DISEASE: FINDING HELP & HOPE

Menkes father & Disorder Rare Disease Film Festival

Cambridge Rare Disease Network - CRDN | Resources | Educational films 6

WHAT DOES ANGELMAN UK MEAN TO YOU? 

seespeakhear.com

Cambridge Rare Disease Network - CRDN | Resources | Educational films 7

TWIN SISTERS WITH
CVID


IPOPI

Cambridge Rare Disease Network - CRDN | Resources | Educational films 8

UNDIAGNOSED CHILDREN’S DAY #UCDSUPERHERO

Genetic Alliance

Cambridge Rare Disease Network - CRDN | Resources | Educational films 9

OUR LEGACY FOR TAY – SACHS & SANDHOFF

The CATS Foundation

Cambridge Rare Disease Network - CRDN | Resources | Educational films 10

DANIAL FROM SINGAPORE, WITH AARSKOG SYNDROME

The Aarskog Foundation

Cambridge Rare Disease Network - CRDN | Resources | Educational films 11

MCAS:  HIDING IN PLAIN SIGHT

Mast Cell Action

Cambridge Rare Disease Network - CRDN | Resources | Educational films 12

DIAMOND BLACKFAN ANAEMIA 


DBA UK
Cambridge Rare Disease Network - CRDN | Resources | Educational films 13

UNSEEN ME


Vasculitis patient

Cambridge Rare Disease Network - CRDN | Resources | Educational films 14

These films were also part of the film festival at

RAREfest18

Genomics England

Cambridge Rare Disease Network - CRDN | Resources | Educational films 15

100,000 Genomes Project

Alex’s Story

Genomics England

Cambridge Rare Disease Network - CRDN | Resources | Educational films 16

100,000 Genomes Project

Arthur’s Story

Genomics England

Cambridge Rare Disease Network - CRDN | Resources | Educational films 17

100,000 Genomes Project

Musa’s Story

Genomics England

Cambridge Rare Disease Network - CRDN | Resources | Educational films 18

100,000 Genomes Project

Jessica’s Story

WELLCOME GENOME CAMPUS SOCIETY & ETHICS

Cambridge Rare Disease Network - CRDN | Resources | Educational films 19

Genetic Counselling in Action

Taking a Family Tree

WELLCOME GENOME CAMPUS SOCIETY & ETHICS

Cambridge Rare Disease Network - CRDN | Resources | Educational films 20

Genetic Counselling in Action

Genetic Risk Assessment

WELLCOME GENOME CAMPUS SOCIETY & ETHICS

Cambridge Rare Disease Network - CRDN | Resources | Educational films 21

Genetic Counselling in Action

Taking Consent for Genetic Testing

WELLCOME GENOME CAMPUS SOCIETY & ETHICS

Cambridge Rare Disease Network - CRDN | Resources | Educational films 22

Genetic Counselling in Action

Giving Genetic Testing Results

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 20

Genetic Counselling in Action

Family Communication

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 20

Genetic Counselling in Action

Follow Up

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 25

Music of Life

De Novo

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 26

Music of Life

3 Outcomes from a Test

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 27

Music of Life

X-Inheritance

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 28

Music of Life

Recessive Inheritance

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 29

Music of Life

Dominant Inheritance

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 30

The 100,000 Genomes Project

How do we get your Results?

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 31

Socialising the Genome

My Genome

WGC Society & Ethics

Cambridge Rare Disease Network - CRDN | Resources | Educational films 32

Socialising the genome

DNAzing

WGC SOCIETY & ETHICS

Cambridge Rare Disease Network - CRDN | Resources | Educational films 33

Socialising the Genome

Gene Deck Shuffle

WGC SOCIETY & ETHICS

Cambridge Rare Disease Network - CRDN | Resources | Educational films 34

Socialising the Genome

Glitch

WGC SOCIETY & ETHICS

Cambridge Rare Disease Network - CRDN | Resources | Educational films 35

Socialising the Genome

Reasons to be Cheerful

WGC SOCIETY & ETHICS

Cambridge Rare Disease Network - CRDN | Resources | Educational films 36

socialising the Genome

Search Me

WELLCOME MRC CAMBRIDGE STEM CALL INSTITUTE

Cambridge Rare Disease Network - CRDN | Resources | Educational films 34

Paula’s story – stem cells and brain repair

WELLCOME MRC CAMBRIDGE STEM CELL INSTITUTE

Cambridge Rare Disease Network - CRDN | Resources | Educational films 35

PETE’S STORY – STEM CELLS AND BLOOD CANCERS

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