The CRDN team
Jo is a founding member of CRDN and manages the operations of the charity. This role includes creation and delivery of CRDN’s events programme: RAREfest; RAREsummit; networking and educational events. Jo is the founder of the CRDN Unique Feet activity and community support group for families affected by rare conditions.
Our Board of Trustees
Our trustees include some of the UK’s foremost experts in rare diseases and our founding members come from diverse backgrounds in academia, business, healthcare, education and patient support networks.
DR. Gemma Chandratillake
Chair and genomics education lead
Gemma is Education and Training Lead in genetics for the East of England. She is trained as a molecular geneticist and genetic counsellor. She has a long-standing interest in rare genetic diseases, having used both fruit flies and worms to model alpha-1-antitrypsin deficiency and Niemann-Pick type C disease in the lab.
DR. TIM GUILLIAMS
Founder, trustee and biotech CEO
Tim is a social entrepreneur passionate about delivering the next generation of therapeutics to rare disease patients in need. He is the Founder and Chief Executive of Healx and the Co-Founder and Chair of the Cambridge Rare Disease Network (CRDN), a charity aiming to foster dialogue and awareness around rare diseases in Cambridge, UK.
Dr. JONATHAN MILNER
Trustee and biotech entrepreneur
Jonathan, co-Founder and currently Deputy Chairman of Abcam plc, is an entrepreneur and investor and is passionate about supporting UK life science and high-tech start-ups. He has provided considerable investment and support to over 40 companies and has assisted three technology companies to IPO on the London AIM Stock exchange.
DR. SARAH LEITER
Trustee and medical doctor
Sarah was born and raised in Germany before moving to the UK to pursue a long-held ambition to study medicine. During her undergraduate training at the University of Cambridge she undertook a number of research projects and decided to do a PhD to further her passion for understanding the basic science underlying medical practice.
Dr. RON JORTNER
Trustee and biotech CEO
Ron (AKA Roni) is a scientist and entrepreneur currently based in Cambridge, UK. He is CRDN’s Companies Forum programme lead.
Ron is founder and managing director of Masthead Biosciences, providing the biomedical and life-sciences communities with professional assessment and research on new treatments, medical technologies, and diagnostics.
MRS SUE BERRY
Trustee and rare disease parent
Sue is a rare disease parent. Her daughter, Charlotte has Coffin Sirius Syndrome. Sue’s involvement with CRDN includes speaking at the first RAREsummit and Charlotte was part of the Unique Feet dance group that performed at RAREfest18.