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#RAREsummit23 Downloads


View or download the RAREsummit23 programme by clicking on the image below
RAREsummit21 delegate handbook front cover


View or download the RAREsummit23 review by clicking the image below
RAREsummit21 review front cover

The programme and content were excellent and I came away inspired by the amazing work within the rare disease community, from the researchers, the innovators, to the patient groups and patients willing to share their stories! Thank you for putting the Summit on!

Paul Gershlick • Veale Wasbrough Vizards LLP

I loved the range of topics, it was really good to see taboo things discussed, and have focus on people that get left out of the conversation a lot. I also loved the scientific focus - I should have bought a notebook.

Lee Reavey • Co-founder, NCBRS Worldwide

The sessions with young people and men were moving and inspiring as well as challenging and thought provoking. These will influence my work & social practice going forward. Thank you to the brave participants!!

Gilliam Carmoodie

First time attendee and I found the event incredibly enjoyable and insightful and thought the main and break out sessions were truly great and also lots of opportunities to engage/network/learn and share.

Dr Richard Lynn • BPSU

Watch RAREsummit23 talks, panel discussions, breakout sessions and testimonials on our YouTube channel