Sharing knowledge, expertise and opinion
Keeping abreast of developments in rare disease can be difficult. We capture the voices of patients, their families and professionals working in the field diseases and share their expertise with you. Browse our educational talks, films, articles, reflective blog posts and news to keep informed.
Attending live events isn’t always easy or possible. Since 2019 we have filmed our live event talks so you can enjoy them on demand and they continue to make an impact.
Brush up on your rare disease knowledge. Patient groups, researchers and companies share their short advocacy, educational and documentary films to help raise awareness and upskill you.