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Cambridge Rare Disease Network - CRDN | Unique Feet 1

 Our story 

Think back to when you were a child.  Think of how important and how fun it was to be part of something communal – a bunch of mates from your street, a sports team, a school class or club – somewhere beyond family where you belonged and thrived.

At Cambridge Rare Disease Network (CRDN) we recognise that for many kids living with rare diseases (RD), accessing those communities and that sense of belonging can be extra tough.  If you might never meet someone else who has to live as you do, that can be isolating, lonely, even painful.  And it can be tough, too, for parents, siblings and other carers, each of whom would love for children living with a rare or undiagnosed condition  to have better access to activities, connections & belonging. 

So, back in 2016, CRDN established our own little RD ‘tribe’ in the Cambridgeshire region. Initially based around shared dance activities, we called our ‘gang’ Unique Feet and created a community group that welcomes all kids (and their parents, siblings and carers), irrespective of their rare condition.  Whether your RD challenge is physical, sensory, neurological or manifests itself as a learning difference, Unique Feet is for you. 

Expanded nowadays to offer regular, super-cool stuff as diverse as horse-riding, archery, canoeing, indoor climbing and trips to the seaside, all of our activities are fully inclusive and every event is accessible to anyone who wants to join in.  We even kept our momentum going through the COVID pandemic lockdowns with yoga sessions on Zoom and personalised activity packs delivered to kids’ homes.  And, of course, we still dance. We boogie with the best!

Unique Feet brings together kids and families who understand each other’s shared challenges and difficulties but who also know how important it is to celebrate their achievements.  Often that understanding enables the UF ‘gang’ to raise one another up to help achieve hopes and dreams that might be so much more difficult to achieve alone. We’d like to help more kids and more families by welcoming more members and  organising even more activities in 2022.  Will you come and join us?

Movement For Good - Nominate us today
Calendar on desk with pencil and pen with orange coloured bar at top with words check out our unique feet event calendar
Calendar on desk with pencil and pen with orange coloured bar at top with words check out our unique feet event calendar
Let's Dance logo Unique Feet
Cambridge Rare Disease Network - CRDN | Unique Feet 2

Join our Unique Feet Community

Are you a family with a child affected by a rare or undiagnosed condition living in the Cambridgeshire or Eastern region? Contact us to find out more about joining our thriving community

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Through your eyes

Meet some of our families and find out the difference UF makes to them

Rare Dancers

In 2016 Unique Feet began with four families, four dancers and great hopes! and their motto became “Life may be not be the party we hoped for, but while we are here we will dance!”

RARE disease day every day

What’s it like living with a rare condition? Unique Feet member Tristan shares his day

CHAMELEONS 

Unique Feet share their community journey through 2020’s COVID-19 lockdown when they were forced to adapt and change, like Chameleons, to fit with their new normal of shielding.