Blog Posts
Events Cancelled! Postponed! How do we roar for rare in the midst of an events crisis?
At CRDN our focus is on raising awareness and building networks to address the unmet needs of those affected by rare disease and the professionals that work with them. So how do organisations like ours maintain momentum during this extended period of lockdown? We...
Meet two of the beating hearts behind CRDN
For third sector organisations, trustees are the beating hearts behind the scenes sharing ultimate responsibility for governance and direction. CRDN is proud to have such a talented board at its helm and we caught up with two of our Trustees, Dr Sarah Leiter and...
The Hackathon Challenge: Two hours, 252 opinions, one priority
Too many cooks or the perfect recipe for success?Important to every CRDN event is equity of voices and we pride ourselves in bringing together the different rare disease stakeholders on an equal standing. RARESummit 2019 was no different and with innovation and...
Unique Feet: Life may not be the party we’d hoped for …
but while we’re here we should dance!In 2015, in response to an invitation to take part in a charity ball, CRDN took the step to create a small Cambridge based dance group for children with a range of rare conditions as a place where they could express themselves....
Pharma Market Europe Award Winners for RAREfest18!
We are feeling very humbled and proud to have learnt today that Cambridge Rare Disease Network (CRDN), with the support of med comms company Havas Life Medicom, were awarded winners of a ‘Judges Special Recognition Award’ at the Pharma Market Europe Awards #PMEA2019...
RARESummit 2019 – Patients as partners
Wellcome Genome Campus hosts CRDN RARESummit 19PASSION LED US HERE A crisp, bright September morning in the calming woodland setting of the Wellcome Genome Campus, Cambridge welcomed a chattering, excited collection of rare disease stakeholders from across the UK and...
CRDN Companies Forum 2020: Connecting the dots
Can CRDN's Companies Forum 2020 connect the dots? Active stakeholders in the rare disease forum are all too aware of the complex landscape that surrounds the development of treatments for such conditions. From small patient populations and lack of real-world evidence...
CRDN host a rare stage at Health Horizons, Cambridge
CRDN brings the RARE voice to major life sciences eventCambridge Biotech week, 25th - 28th of June 2019, was a brand new festival of events launched by the Global Innovation Forum designed to accelerate scientific ideas and support investment and growth for...
CRDN teams up with Findacure to bring a sip of RARE to Pint of Science Festival
For the second consecutive year, CRDN is hosting 2 rare disease themed evenings for the Pint of Science Festival. We'll be based at the Panton Arms in Cambridge on 21 and 22 May inspiring the general public to be curious about the science and research taking place...
2019 Rare Disease Day Cambridge Lecture
Put over 150 passionate and motivated people together to talk about rare disease research and you can expect a fascinating evening. That’s just what happened at the recent public evening, hosted by Cambridge Rare Disease Network in collaboration with the NIHR...
RAREfest18 “heartwarming, uplifting, informative”
Heartwarming, uplifting and informative, the world’s first-ever festival on rare diseases drew huge crowds to the Guildhall over the weekend of November 30 & December 1. RAREfest was the first of its kind; a rare disease inspired festival, created and delivered...
Adam Pearson: Actor, TV presenter and campaigner speaking and exhibiting at #RAREFest18
Breaking news!! RAREfest18, which already had an amazing line-up, just got even better... Adam Pearson and Dagmar Bennett in conversation will talk us through their collaboration to create this wonderful sculpture of Adam. Their talk will be part of...
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