News
MHRA Proposal for Accelerating Rare Disease Treatments
Join CamRARE online on 15 July, to delve into the detail of the MHRA's proposed new framework, designed to help accelerate treatments and therapies for rare conditions.A New Framework for Accelerating Rare Disease Treatments The traditional method for developing...
Progress, Potential & Challenges in Gene Therapy: Companies Forum Insights
At CamRARE, we believe that real progress in rare diseases happens when we break down silos and build bridges. That’s the purpose of Companies Forum - a trusted space where leaders connect to challenge assumptions, share insights, and co-create bold...
RAREsummit Legacy in Action
Where Connections Become BreakthroughsThe opening “Legacy in Action” panel at RAREsummit25, demonstrates just how valuable the connections made at past RAREsummits can be. In a space often defined by complexity, long timelines, and uncertainty, this session perfectly...
Navigating Mental Wellbeing – Highlights from RAREsummit25
Challenges, strategies and insights for supporting mental health while living with a rare conditionLiving with a rare condition, or caring for someone who does, can take a profound toll on mental wellbeing. While healthcare systems tend to prioritise diagnosis and...
Data, Digital Tech and the People Behind the Numbers: Insights from Companies Forum
At CamRARE, we believe that real progress in rare diseases happens when we break down silos and build bridges. That’s the purpose of Companies Forum - a trusted space where leaders connect to challenge assumptions, share insights, and co-create bold solutions. In...
Breathing Life Into Existing Technology – Highlights from RAREsummit25
How a Father, a Designer, and a Bold Idea Are Changing the Future This powerful presentation followed two insightful panel discussions at #RAREsummit25, firstly exploring the power of collaboration and secondly showcasing a selection of patient led research ideas. It...
Progress, Partnership, and Possibility – Highlights from RAREsummit25
Cambridge Rare Disease Network marks 10 years of collaboration at RAREsummit25.The Cambridge Rare Disease Network (CamRARE) celebrated its 10th anniversary in inspiring style, as 250 delegates gathered on 6 November at the Wellcome Genome Campus for RAREsummit25,...
Reducing the Diagnostic Odyssey: Insights from Companies Forum
At CamRARE, we believe that real progress in rare diseases happens when we break down silos and build bridges. That’s the purpose of Companies Forum - a trusted space where leaders connect to challenge assumptions, share insights, and co-create bold solutions.The...
RAREsummit returns to Cambridge for 2025
CamRARE’s unique biannual conference is back for 2025 - gathering scientists, researchers, tech innovators, policy-makers, funders and patient organisations to connect and collaborate. Did you know that the CamRARE charity was formed following the first RAREsummit in...
Cards for Bravery: Spreading Joy and Hope One Card at a Time
Imagine being a child, lying in a hospital bed for days, weeks, or even months. The outside world moves on, but time stands still for you. You’re isolated, missing out on school, friends, and the simple joys of childhood. In this lonely environment, where every day...
Science, Meet Imagination: Rare Disease Research Reimagined Through Art Translations
The ART-TRAnslations Project, supported by Life Arc and the Cambridge Rare Disease Network, is more than just an art exhibition; it’s a radical merging of art and science designed to render rare diseases visible in new and imaginative ways. This visionary initiative...
From Pastry to Chocolate: How Stuart Hann Turned Blindness into a Sweet Success Story
In the heart of the English Lake District, where rolling hills meet tranquil waters, there’s a story that’s as sweet and rich as the finest chocolate you’ll ever taste. It’s the story of Stuart Hann—an award-winning pastry chef turned pioneering chocolatier—whose...