Pharma Market Europe Award Winners!

The CRDN team are delighted to have received the
‘Judges Special Recognition Award’ for RAREfest18

Pharma Market Europe Award Winners!

The CRDN team are delighted
to have received the 
‘Judges Special Recognition Award’
for RAREfest18

Missed RAREsummit19?

Would you like to catch up on the talks, hackathon feedback and photos of the day…

Welcome to

Cambridge Rare

Disease Network

Cambridge Rare Disease Network (CRDN) is a charity building a regional community to address the unmet needs of those living with rare conditions, their families and the professionals who work with them.  Our vision is for a united regional voice underpinning the development of services and treatments. 

Medical research and drug development have transformed the lives of people living with diseases that were formerly untreatable. Our challenge is to address the 95% of rare conditions which still have no treatment. 

We deliver events and activities that stimulate interest and awareness creating a climate of collaboration and innovation to address these unmet therapeutic needs. 

We support those living with rare conditions in our community to be at the heart of these events and to be part of this wider network.

Would you like to know more about us?

BBS UK Weekend Family Conference, 17th-19th April at Hilton, Northampton - a fabulous event for those living with BBS or wanting to learn more.. email [email protected] for info/booking form

#2020 shaping up nicely! Planning our #RareDiseaseDay family & friends event, partnering with @BPSUtweet, @M4RareDiseases, @findacure_fdn & @RareRevolutionM to bring a #raredisease session to the RCPCH conf, building a rare @pintofscience team, brainstorming #RAREfest20 & more!

Do you remember when you joined Twitter? We do! We joined 5 years ago today. Thanks to all of our followers for continuing to be passionate and engaged in raising awareness about #RareDisease with us #MyTwitterAnniversary #rarediseaseday #raisingawareness

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THANK YOU To OUR Pro bono Supporters


CRDN Are MEmbers of

If you’d like to know more about Cambridge Rare Disease Network, or if you have any questions about our activities or partnerships, please contact us:

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