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Cambridge Rare Disease Network - Cambridge Rare Disease Network 1

Missed RAREsummit19?

Would you like to watch the talks and panels, see the hackathon feedback and photo gallery from the day?

View photos, films and download reports
Cambridge Rare Disease Network - Cambridge Rare Disease Network 2
Download the hackathon report!

Pharma Market Europe Award Winners!

The CRDN team are delighted to have received the 
Judges Special Recognition Award
for RAREfest18

Read all about it

Pharma Market
Europe Award winners!


‘Judges Special Recognition Award’
for RAREfest18

Read more

Welcome to

Cambridge Rare

Disease Network

Cambridge Rare Disease Network (CRDN) is a charity building a regional community to address the unmet needs of those living with rare conditions, their families and the professionals who work with them.  Our vision is for a united regional voice underpinning the development of services and treatments. 

Medical research and drug development have transformed the lives of people living with diseases that were formerly untreatable. Our challenge is to address the 95% of rare conditions which still have no treatment. 

We deliver events and activities that stimulate interest and awareness creating a climate of collaboration and innovation to address these unmet therapeutic needs. 

We support those living with rare conditions in our community to be at the heart of these events and to be part of this wider network.

Would you like to know more about us?

CRDN's aims and objectives
The CRDN team and trustees
Supporting CRDN

 

camraredisease

Cambridge Rare Disease Network - Cambridge Rare Disease Network 3

Cambridge Rare Disease NetworkFollow

Cambridge Rare Disease Network
camrarediseaseCambridge Rare Disease Network@camraredisease·
20h

What a wonderfully human thing to do to help #patients feel better connected and less afraid. Thank you @NHS @PaedsNurseDanny. Maybe an idea to share with @CUH_NHS @SarahLeiter & @TraceyMurray575?

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camrarediseaseCambridge Rare Disease Network@camraredisease·
7 Apr

My week on Twitter 🎉: 9 Mentions, 30.9K Mention Reach, 57 Likes, 29 Retweets, 116K Retweet Reach. See yours with https://sumall.com/performancetweet?utm_source=twitter&utm_medium=publishing&utm_campaign=performance_tweet&utm_content=text_and_media&utm_term=f3a89934d05fe36c24564d90

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camrarediseaseCambridge Rare Disease Network@camraredisease·
7 Apr

Our biggest fans this week: rarediseaseuk, GeneticAll_UK, nursemaiden. Thank you! via https://sumall.com/thankyou?utm_source=twitter&utm_medium=publishing&utm_campaign=thank_you_tweet&utm_content=text_and_media&utm_term=f3a89934d05fe36c24564d90

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THANK YOU TO our CURRENT SPONSORS and grant funders

Cambridge Rare Disease Network - Cambridge Rare Disease Network 4
Cambridge Rare Disease Network - Cambridge Rare Disease Network 5
Cambridge Rare Disease Network - Cambridge Rare Disease Network 6
Cambridge Rare Disease Network - Cambridge Rare Disease Network 7
Cambridge Rare Disease Network - Cambridge Rare Disease Network 8
Cambridge Rare Disease Network - Cambridge Rare Disease Network 9
Cambridge Rare Disease Network - Cambridge Rare Disease Network 10
Cambridge Rare Disease Network - Cambridge Rare Disease Network 11
Cambridge Rare Disease Network - Cambridge Rare Disease Network 12
Cambridge Rare Disease Network - Cambridge Rare Disease Network 13
Cambridge Rare Disease Network - Cambridge Rare Disease Network 14
Cambridge Rare Disease Network - Cambridge Rare Disease Network 15

THANK YOU To OUR Pro bono Supporters

Cambridge Rare Disease Network - Cambridge Rare Disease Network 16
Cambridge Rare Disease Network - Cambridge Rare Disease Network 17
Cambridge Rare Disease Network - Cambridge Rare Disease Network 18
Cambridge Rare Disease Network - Cambridge Rare Disease Network 19
Cambridge Rare Disease Network - Cambridge Rare Disease Network 20

IN PARTNERSHIP WITH

Cambridge Rare Disease Network - Cambridge Rare Disease Network 21
Cambridge Rare Disease Network - Cambridge Rare Disease Network 22
Cambridge Rare Disease Network - Cambridge Rare Disease Network 23
Cambridge Rare Disease Network - Cambridge Rare Disease Network 24
Cambridge Rare Disease Network - Cambridge Rare Disease Network 25
Cambridge Rare Disease Network - Cambridge Rare Disease Network 26

CRDN are members of

Cambridge Rare Disease Network - Cambridge Rare Disease Network 27
Cambridge Rare Disease Network - Cambridge Rare Disease Network 28
Cambridge Rare Disease Network - Cambridge Rare Disease Network 29
Cambridge Rare Disease Network - Cambridge Rare Disease Network 30
Cambridge Rare Disease Network - Cambridge Rare Disease Network 31

If we all got involved, imagine the difference we could make? Don’t just follow us, interact with us and join our thriving rare disease community! There’s lots of ways right here to begin your journey with us…

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