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CORONAVIRUS (COVID-19) 

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Cambridge Rare Disease Network - Cambridge Rare Disease Network 1

Missed RAREsummit19?

Would you like to catch up on the talks, hackathon feedback and photos of the day…

Pharma Market Europe Award Winners!

The CRDN team are delighted to have received the 
‘Judges Special Recognition Award’
for RAREfest18

Pharma Market
Europe Award winners!


‘Judges Special Recognition Award’
for RAREfest18

Welcome to

Cambridge Rare

Disease Network

Cambridge Rare Disease Network (CRDN) is a charity building a regional community to address the unmet needs of those living with rare conditions, their families and the professionals who work with them.  Our vision is for a united regional voice underpinning the development of services and treatments. 

Medical research and drug development have transformed the lives of people living with diseases that were formerly untreatable. Our challenge is to address the 95% of rare conditions which still have no treatment. 

We deliver events and activities that stimulate interest and awareness creating a climate of collaboration and innovation to address these unmet therapeutic needs. 

We support those living with rare conditions in our community to be at the heart of these events and to be part of this wider network.

Would you like to know more about us?

Cambridge University is co-ordinating the distribution of personal protective equipment to local medics battling the #COVID19 outbreak.

Equipment has been donated by local labs, building sites and university departments: https://bit.ly/33W2xSw

#Cambridge

A reminder from our designer @visualsumo. Su is #StayAtHome for 12 wks as she has Bechets Syndrome, a very high risk autoimmune disease, but we can’t lock our #NHS up so please stay home to protect them, our older folk & people medically at high risk @CUH_NHS @NHS #RareDiseases

Today is #WorldLipodystrophyDay - raising awareness of this rare, serious & hard to treat condition. Check out this @LipodystrophyUk info poster about one form of the condition, created for our summit 2017, to learn about their hopes for the future #RareDiseases #Rare #research

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THANK YOU TO our CURRENT SPONSORS and grant funders

Cambridge Rare Disease Network - Cambridge Rare Disease Network 4
Cambridge Rare Disease Network - Cambridge Rare Disease Network 5
Cambridge Rare Disease Network - Cambridge Rare Disease Network 6
Cambridge Rare Disease Network - Cambridge Rare Disease Network 7
Cambridge Rare Disease Network - Cambridge Rare Disease Network 8
Cambridge Rare Disease Network - Cambridge Rare Disease Network 9
Cambridge Rare Disease Network - Cambridge Rare Disease Network 10
Cambridge Rare Disease Network - Cambridge Rare Disease Network 11
Cambridge Rare Disease Network - Cambridge Rare Disease Network 12
Cambridge Rare Disease Network - Cambridge Rare Disease Network 13
Cambridge Rare Disease Network - Cambridge Rare Disease Network 14
Cambridge Rare Disease Network - Cambridge Rare Disease Network 15

THANK YOU To OUR Pro bono Supporters

Cambridge Rare Disease Network - Cambridge Rare Disease Network 16
Cambridge Rare Disease Network - Cambridge Rare Disease Network 17
Cambridge Rare Disease Network - Cambridge Rare Disease Network 18
Cambridge Rare Disease Network - Cambridge Rare Disease Network 19
Cambridge Rare Disease Network - Cambridge Rare Disease Network 20

IN PARTNERSHIP WITH

Cambridge Rare Disease Network - Cambridge Rare Disease Network 21
Cambridge Rare Disease Network - Cambridge Rare Disease Network 22
Cambridge Rare Disease Network - Cambridge Rare Disease Network 23
Cambridge Rare Disease Network - Cambridge Rare Disease Network 24
Cambridge Rare Disease Network - Cambridge Rare Disease Network 25
Cambridge Rare Disease Network - Cambridge Rare Disease Network 26

CRDN are members of

Cambridge Rare Disease Network - Cambridge Rare Disease Network 27
Cambridge Rare Disease Network - Cambridge Rare Disease Network 28
Cambridge Rare Disease Network - Cambridge Rare Disease Network 29
Cambridge Rare Disease Network - Cambridge Rare Disease Network 30
Cambridge Rare Disease Network - Cambridge Rare Disease Network 31

If we all got involved, imagine the difference we could make? Don’t just follow us, interact with us and join our thriving rare disease community! There’s lots of ways right here to begin your journey with us…

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