Cambridge Rare Disease Network
Cambridge Rare Disease Network is a platform for change. It is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain.
BUILDING SUPPORTIVE COMMUNITIES
Sharing experiences helps people connect and deepens understanding. Living with a rare disease can be scary, overwhelming and isolating. CRDN empowers patients and families to share their experiences with each other and with those professionals whose expertise could help improve diagnosis, treatment and care.
EDUCATING, CONNECTING, COLLABORATING
The patient journey runs smoother when stakeholders are informed and working in partnership with patients. We create events where stakeholders in research and development share the stage with patients and advocates to showcase partnerships, learn from each other and find ways to collaborate for better patient impact.
SHARING EXPERIENCES, knowledge & innovation
We capture the voices of patients, families and professionals working in the field of rare diseases and share their expertise with you. Keep abreast of developments in rare disease research, drug development and advocacy by browsing our educational talks, short films, articles, reports and reflective blog posts.