Pharma Market Europe Award Winners!

The CRDN team are delighted to have received the
‘Judges Special Recognition Award’ for RAREfest18

Read all about it

Pharma Market Europe Award Winners!

The CRDN team are delighted
to have received the ‘Judges Special Recognition Award’
for RAREfest18

Read all about it

Missed RAREsummit19?

Would you like to catch up on the talks, hackathon feedback and photos of the day…

View photos, films and download reports
Download the hackathon report!

Welcome to

Cambridge Rare

Disease Network

Cambridge Rare Disease Network (CRDN) is a charity building a regional community to address the unmet needs of those living with rare conditions, their families and the professionals who work with them.  Our vision is for a united regional voice underpinning the development of services and treatments. 

Medical research and drug development have transformed the lives of people living with diseases that were formerly untreatable. Our challenge is to address the 95% of rare conditions which still have no treatment. 

We deliver events and activities that stimulate interest and awareness creating a climate of collaboration and innovation to address these unmet therapeutic needs. 

We support those living with rare conditions in our community to be at the heart of these events and to be part of this wider network.

Would you like to know more about us?

CRDN's aims and objectives
The CRDN team and trustees
Can you help fundraise for CRDN?

Cambridge Rare Disease NetworkFollow

Cambridge Rare Disease Network
Retweet on TwitterCambridge Rare Disease Network Retweeted
LMBBS1BBS UK@LMBBS1·
16 Jan

BBS UK Weekend Family Conference, 17th-19th April at Hilton, Northampton - a fabulous event for those living with BBS or wanting to learn more.. email [email protected] for info/booking form

Reply on Twitter 1217917316589137922Retweet on Twitter 12179173165891379225Like on Twitter 12179173165891379224Twitter 1217917316589137922
camrarediseaseCambridge Rare Disease Network@camraredisease·
14 Jan

#2020 shaping up nicely! Planning our #RareDiseaseDay family & friends event, partnering with @BPSUtweet, @M4RareDiseases, @findacure_fdn & @RareRevolutionM to bring a #raredisease session to the RCPCH conf, building a rare @pintofscience team, brainstorming #RAREfest20 & more!

Reply on Twitter 1217010061534515201Retweet on Twitter 12170100615345152016Like on Twitter 121701006153451520124Twitter 1217010061534515201
camrarediseaseCambridge Rare Disease Network@camraredisease·
12 Jan

Do you remember when you joined Twitter? We do! We joined 5 years ago today. Thanks to all of our followers for continuing to be passionate and engaged in raising awareness about #RareDisease with us #MyTwitterAnniversary #rarediseaseday #raisingawareness

Reply on Twitter 1216264384353271809Retweet on Twitter 1216264384353271809Like on Twitter 12162643843532718094Twitter 1216264384353271809
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