CORONAVIRUS (COVID-19) 

Looking for up to date official guidance and advice about COVID-19 in relation to rare diseases?  Or for details of the plans to ease guidance for over 2 million shielding? Visit our COVID-19 hub.

We have lift off!! 

RAREfest 20 - RAREsolutions logo

our poster design competition with a conscience for young people has launched …

Cambridge Rare Disease Network - Cambridge Rare Disease Network 1

Missed RAREsummit19?

You can watch the talks and panels, view the hackathon pitchs and photo gallery from the day

Welcome to

Cambridge Rare

Disease Network

Cambridge Rare Disease Network (CRDN) is a charity building a vibrant community to address the unmet needs of those living with rare conditions, their families and the professionals who work with them.  Our vision is for a united regional voice underpinning the development of services and treatments. 

Medical research and drug development have transformed the lives of people living with diseases that were formerly untreatable. Our challenge is to address the 95% of rare conditions which still have no treatment and inadequate care pathways. 

We deliver world class events and activities that put rare diseases in the spotlight to stimulate curiosity and educate the public and professionals alike. This knowledge builds confidence and empowers people to collaborate and be innovative to address these unmet therapeutic and care needs. 

We support those living with rare conditions in our community to be at the heart of these events and to be part of this wider network, sharing their expertise and becoming leaders of change.

Would you like to know more about us?

#ejprd Policy Board & GoverningBoard #online #meeting!
Short overview on the pillar activities done in this year and a half! Thank you all for your help, support, and collaboration 💪😃 Check out the available initiatives:
https://www.ejprarediseases.org/
#raredisease

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We are working collaboratively with a large number of rare disease experts to develop a #COVID19 impact & opportunities study. We are interested to hear from patient grps, researchers & companies if #raredisease research & #clinicaltrials have been directly affected. Please share

We are working collaboratively with a large number of rare disease experts to develop a #COVID19 impact & opportunities study. We are interested to hear from patient grps, researchers & companies if #raredisease research & #clinicaltrials have been directly affected. Please share

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THANK YOU TO our CURRENT SPONSORS and grant funders

Cambridge Rare Disease Network - Cambridge Rare Disease Network 4
Cambridge Rare Disease Network - Cambridge Rare Disease Network 5
Cambridge Rare Disease Network - Cambridge Rare Disease Network 6
Cambridge Rare Disease Network - Cambridge Rare Disease Network 7
Cambridge Rare Disease Network - Cambridge Rare Disease Network 8
Cambridge Rare Disease Network - Cambridge Rare Disease Network 9
Cambridge Rare Disease Network - Cambridge Rare Disease Network 10
Cambridge Rare Disease Network - Cambridge Rare Disease Network 11
Cambridge Rare Disease Network - Cambridge Rare Disease Network 12
Cambridge Rare Disease Network - Cambridge Rare Disease Network 13
Cambridge Rare Disease Network - Cambridge Rare Disease Network 14
Cambridge Rare Disease Network - Cambridge Rare Disease Network 15

THANK YOU To OUR Pro bono Supporters

Cambridge Rare Disease Network - Cambridge Rare Disease Network 16
Cambridge Rare Disease Network - Cambridge Rare Disease Network 17
Cambridge Rare Disease Network - Cambridge Rare Disease Network 18
Cambridge Rare Disease Network - Cambridge Rare Disease Network 19
Cambridge Rare Disease Network - Cambridge Rare Disease Network 20

IN PARTNERSHIP WITH

Cambridge Rare Disease Network - Cambridge Rare Disease Network 21
Cambridge Rare Disease Network - Cambridge Rare Disease Network 22
Cambridge Rare Disease Network - Cambridge Rare Disease Network 23
Cambridge Rare Disease Network - Cambridge Rare Disease Network 24
Cambridge Rare Disease Network - Cambridge Rare Disease Network 25
Cambridge Rare Disease Network - Cambridge Rare Disease Network 26

CRDN are members of

Cambridge Rare Disease Network - Cambridge Rare Disease Network 27
Cambridge Rare Disease Network - Cambridge Rare Disease Network 28
Cambridge Rare Disease Network - Cambridge Rare Disease Network 29
Cambridge Rare Disease Network - Cambridge Rare Disease Network 30
Cambridge Rare Disease Network - Cambridge Rare Disease Network 31

If we all got involved, imagine the difference we could make? Don’t just follow us, interact with us and join our thriving rare disease community! There’s lots of ways right here to begin your journey with us…

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