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Cambridge Rare Disease Network - Cambridge Rare Disease Network 1

Missed RAREsummit19?

Would you like to catch up on the talks, hackathon feedback and photos of the day…

View photos, films and download reports
Cambridge Rare Disease Network - Cambridge Rare Disease Network 2
Download the hackathon report!

Pharma Market Europe Award Winners!

The CRDN team are delighted to have received the 
‘Judges Special Recognition Award’
for RAREfest18

Read all about it

Pharma Market
Europe Award winners!


‘Judges Special Recognition Award’
for RAREfest18

Read more

Welcome to

Cambridge Rare

Disease Network

Cambridge Rare Disease Network (CRDN) is a charity building a regional community to address the unmet needs of those living with rare conditions, their families and the professionals who work with them.  Our vision is for a united regional voice underpinning the development of services and treatments. 

Medical research and drug development have transformed the lives of people living with diseases that were formerly untreatable. Our challenge is to address the 95% of rare conditions which still have no treatment. 

We deliver events and activities that stimulate interest and awareness creating a climate of collaboration and innovation to address these unmet therapeutic needs. 

We support those living with rare conditions in our community to be at the heart of these events and to be part of this wider network.

Would you like to know more about us?

CRDN's aims and objectives
The CRDN team and trustees
Can you help fundraise for CRDN?

 

camraredisease

Cambridge Rare Disease Network - Cambridge Rare Disease Network 3

Cambridge Rare Disease NetworkFollow

Cambridge Rare Disease Network
Retweet on TwitterCambridge Rare Disease Network Retweeted
Cambridge_UniCambridge University@Cambridge_Uni·
31 Mar

Cambridge University is co-ordinating the distribution of personal protective equipment to local medics battling the #COVID19 outbreak.

Equipment has been donated by local labs, building sites and university departments: https://bit.ly/33W2xSw

#Cambridge

Reply on Twitter 1244971391646142464Retweet on Twitter 124497139164614246465Like on Twitter 1244971391646142464180Twitter 1244971391646142464
camrarediseaseCambridge Rare Disease Network@camraredisease·
12h

A reminder from our designer @visualsumo. Su is #StayAtHome for 12 wks as she has Bechets Syndrome, a very high risk autoimmune disease, but we can’t lock our #NHS up so please stay home to protect them, our older folk & people medically at high risk @CUH_NHS @NHS #RareDiseases

Reply on Twitter 1245279454206799873Retweet on Twitter 1245279454206799873Like on Twitter 12452794542067998731Twitter 1245279454206799873
camrarediseaseCambridge Rare Disease Network@camraredisease·
31 Mar

Today is #WorldLipodystrophyDay - raising awareness of this rare, serious & hard to treat condition. Check out this @LipodystrophyUk info poster about one form of the condition, created for our summit 2017, to learn about their hopes for the future #RareDiseases #Rare #research

Reply on Twitter 1244975075251621888Retweet on Twitter 12449750752516218887Like on Twitter 124497507525162188813Twitter 1244975075251621888
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THANK YOU TO our CURRENT SPONSORS and grant funders

Cambridge Rare Disease Network - Cambridge Rare Disease Network 4
Cambridge Rare Disease Network - Cambridge Rare Disease Network 5
Cambridge Rare Disease Network - Cambridge Rare Disease Network 6
Cambridge Rare Disease Network - Cambridge Rare Disease Network 7
Cambridge Rare Disease Network - Cambridge Rare Disease Network 8
Cambridge Rare Disease Network - Cambridge Rare Disease Network 9
Cambridge Rare Disease Network - Cambridge Rare Disease Network 10
Cambridge Rare Disease Network - Cambridge Rare Disease Network 11
Cambridge Rare Disease Network - Cambridge Rare Disease Network 12
Cambridge Rare Disease Network - Cambridge Rare Disease Network 13
Cambridge Rare Disease Network - Cambridge Rare Disease Network 14
Cambridge Rare Disease Network - Cambridge Rare Disease Network 15

THANK YOU To OUR Pro bono Supporters

Cambridge Rare Disease Network - Cambridge Rare Disease Network 16
Cambridge Rare Disease Network - Cambridge Rare Disease Network 17
Cambridge Rare Disease Network - Cambridge Rare Disease Network 18
Cambridge Rare Disease Network - Cambridge Rare Disease Network 19
Cambridge Rare Disease Network - Cambridge Rare Disease Network 20

IN PARTNERSHIP WITH

Cambridge Rare Disease Network - Cambridge Rare Disease Network 21
Cambridge Rare Disease Network - Cambridge Rare Disease Network 22
Cambridge Rare Disease Network - Cambridge Rare Disease Network 23
Cambridge Rare Disease Network - Cambridge Rare Disease Network 24
Cambridge Rare Disease Network - Cambridge Rare Disease Network 25
Cambridge Rare Disease Network - Cambridge Rare Disease Network 26

CRDN are members of

Cambridge Rare Disease Network - Cambridge Rare Disease Network 27
Cambridge Rare Disease Network - Cambridge Rare Disease Network 28
Cambridge Rare Disease Network - Cambridge Rare Disease Network 29
Cambridge Rare Disease Network - Cambridge Rare Disease Network 30
Cambridge Rare Disease Network - Cambridge Rare Disease Network 31

If we all got involved, imagine the difference we could make? Don’t just follow us, interact with us and join our thriving rare disease community! There’s lots of ways right here to begin your journey with us…

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