Cambridge Rare Disease Network (CRDN) is a charity building a vibrant community to address the unmet needs of those living with rare conditions, their families and the professionals who work with them.  Our vision is for a united regional voice underpinning the development of services and treatments. 

Medical research and drug development have transformed the lives of people living with diseases that were formerly untreatable. Our challenge is to address the 95% of rare conditions which still have no treatment and inadequate care pathways. 

We deliver world class events and activities that put rare diseases in the spotlight to stimulate curiosity and educate the public and professionals alike. This knowledge builds confidence and empowers people to collaborate and be innovative to address these unmet therapeutic and care needs. 

We support those living with rare conditions in our community to be at the heart of these events and to be part of this wider network, sharing their expertise and becoming leaders of change.