Advice and Resources

We set up the Unique Feet community to unite families with shared experiences of living with a rare or undiagnosed condition. Over time these families shared advice and stories about how best to raise their children as well as the challenges they faced. We have listened to their experiences and tried to find the answer to common questions posed by our rare disease community. Below is a list of resources we have made with their help to address the common challenges that arise from raising a child with a rare condition.