CamRARE’s Companies Forum
Connecting the Dots in Rare Disease Innovation
At CamRARE, we believe that real progress in rare diseases happens when we break down silos and build bridges. That’s the purpose of Companies Forum.
We’ve seen the transformative power of open, cross-sector collaboration. When industry, policy, academia, and patient communities come together, we unlock change that truly matters for people living with rare diseases.
Our Companies Forum is a trusted space where rare disease leaders connect to challenge assumptions, share insights, and explore bold solutions. At these in-person, collaborative meetings and networking events each quarter, we’re not just talking about barriers, we’re dismantling them.
Partnership Benefits to Deliver Impact
From startups and SMEs to global pharma and international research organisations, Companies Forum offers a flexible and impactful partnership model for everyone.
Exclusive events with expert-led discussions on emerging challenges and opportunities.
High-level networking – connect with key stakeholders from industry, academia, healthcare, and patient communities.
Thought leadership opportunities – share your insights, showcase your work, and help shape the conversation.
Cross-sector collaboration – work alongside diverse voices to create real-world solutions.
Insights from recent meetings
March 2026
Gene Therapy
Often described as transformational, but what does that mean in practice? Discussions reveal a nuanced picture of extraordinary scientific progress and complex real world challenges.
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December 2025
Patient Data & Tech
Exploring the evolving digital patient data value chain – its opportunities, its challenges, and what it means for the future partnership between industry, patients and the health system.
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July 2025
Diagnostic Odyssey
The journey to a rare diagnosis is often described as an “odyssey” – long and exhausting, marked by misdiagnoses, delays, and uncertainty. How can we create an equitable system?
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Next Meeting: 10 Sept 2026, London
Clinical trails and informed consent
To discuss membership, email us at: info@camraredisease.org
Companies Forum Members Include:
