Reflections
RAREfest20 | Reflections
“This was a fabulous day; very well organised and thought provoking!”
Noonan Syndrome Association
Over 25 young people did live quizzes, demos, performances and panel discussions. Dana, Cookies4Cures founder from the USA, joined us for a live cookie decorating demo and to talk to us about how she’s raising funds for rare disease research, giving hope one cookie at a time. Meet all of the 36 speakers who took part.
21 science, technology, advocacy and arts organisations from the UK, Europe and the USA hosted exhibition stands with interactive content, fun experiments, cool facts and information and opportunity to chat to the experts behind the stand.
%
thought the organisation was very good or excellent
%
thought RAREfest20 was very good or excellent
%
made good connections which could prove fruitful in the future
%
are more interested in rare disease after RAREfest20
%
had never attended a rare disease event before
“The platform was fantastic.
Well organised exhibitions and I loved the “swag bag” aspect and the fact that it was still available online for a period of time after the event so I could re-watch and revisit. Obviously there was a lot to take in on one day so this was a wonderful addition to your event.”
Allanna Anderson
“All the talks &
presentations I attended were
great, but the talk around the film ‘Journey of Hope’ was particularly emotive, poignant and inspiring. Each of the talks I attended inspired me to look into specific areas around rare disease further.”
Andrea Reid-Kelly, Noonan Syndrome Association and Together
It was such an amazing event,
so well organised. So much varied content. Really, really gripping, moving, exciting, inspiring, colourful, insightful and a million other thoughts and feelings.
Anna Todd
Cambridge Children’s
Hospital
Overall my favourite thing
was how brilliantly RAREfest
was adapted to a virtual platform.
It was also great that you got sponsorship for the poster gallery and were so supportive when I submitted the new MdDS poster.
Polly Moyer, Action for Mal de
Debarquement Syndrome
RAREfest20 was generously sponsored by
