Cambridge Rare Disease Network - RAREfest24 | Review 1

RAREfest24 Highlights – ‘Through Your Eyes’

In November 2024, RAREfest24 brought science, education, and community together in the heart of Cambridge. This vibrant event showcased the collective voice of the rare disease community, highlighting challenges, progress, and opportunities through CamRARE’s impactful, multi-disciplinary networking format.

 

Turn up the volume to take in the highlights from our short film. Find the full playlist of talks, panel discussions and monologues over on our YouTube channel, everything from the wonderful Unique Feet ‘Hopes & Dreams’ performance to digging down into the oimpact of climate change of rare diseaes in ‘Rare & Hot’. Hit subscribe while you’re there to follow our channel.

Scroll through the RAREfest24 gallery of photos shared by volunteers

RAREfest24 Review: downloadable and flippable

Thank you to everyone who brought so much passion to RAREfest24! Our event celebrated science, creativity, and community, offering hands-on activities, inspiring talks, and engaging experiences for all ages.

This unique festival connected scientists, patient organisations, and the public to share stories, explore research, and foster collaboration. Attendees left inspired, and young visitors may have sparked dreams of becoming tomorrow’s innovators and changemakers. We hope so. Download the review now to relive the highlights!.

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RAREfest24: in numbers

An infographic showing impact data of rare fest 2022
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RAREfest24: in your words

My favourite thing was learning about other peoples’ experiences. What made RAREfest different from other events I’ve been to is the way stories are told. While there were ‘standard’ presentations (which are just as good and important), there were also stories told through music, dance, comedy, art…
…which was so different and just as impactful.

Chelsea Wong

Exhibitor, Lupus UK, RDRN & Cards for Bravery

It’s been really amazing for our
staff. We don’t meet patients very
often, so to connect the samples and
the data we’re working on with
people for whom their research can
impact their lives has been really,
special. I know it’s something they’re
going to remember and take back to
the labs when they go back to them
next week.

Jack Monaghan

Science Engagement Manager, Wellcome Genome Campus

I’ve thoroughly enjoyed the talks – I
have cried, and I have learned so
much from the young people who
spoke.

When you come to events, you
don’t know whether it will be pitched
at too high a level – for scientists –
but for the general public to come
away buzzing with what you’ve
learned is so empowering!

Alison Omand-Lewis

Advocate, CamRARE Unique Feet Community

Click on the images below to meet exhibitors and speakers, and view the programme

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Thank you to our RAREfest sponsors

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