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RECORDINGS OF TALKS and PANEL Discussions From CRDN’s RAREsummit19 


RS19 - youtube screenshot 1

Disruptive technologies – Patients at the heart of AI
Chair: Dr Tim Guilliams

RS19 - youtube screen 2

Co-creating genetic reports for non-specialists
Chair: Dr Gemma Chandratillake

RS19 - youtube screengrab 3

Patient groups in drug development
Chair: Dr Ana Mingorance

RS19 - youtube screen 4

Patients as partners in assistive technology design: Celia Morrison Miccosoft, Dr Sarah Leiter

RS19 - youtube screenshot 5

“Peer-led to get Ahead”: Laurence Woollard

RS19 - youtube screenshot 6

UK Rare Disease Strategy: Baroness Nicola Blackwood

Cambridge Rare Disease Network - Resources | Educational talks 1

RAREsummit19 Hackathon; Presentations & voting

RS19 - youtube Screenshot 7

Welcome Address: Dr Jonathan Milner, Abcam, CRDN Trustee

RS19 - youtube Screenshot 10

Keynote Address: Alastair Kent OBE

RS19 Youtube screengrab - CUH

Testimonial: Genomic Laboratory Hub, Addenbrookes

RS19 YouTube Screenshot- PCD

Testimonial: PCD Family Support Group UK

RS19 YouTube Screenshot - Ataxia

Testimonial: Alan Thomas of Ataxia and Me

RS19 YouTube Screenshot - vision DMD

Testimonial: Vision DMD

RS19 YouTube Screenshot - AMICUS

Testimonial: Amicus Therapeutics

RS19 YouTube Screenshot - Look east news

RAREsummit19 on BBC News

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