WILL you become a sponsor of our award winning

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 disease events?

Join a range of companies who care about rare and become one of our corporate sponsors for our events programme in 2026.

Or contact us to discuss other ways your company can support CamRARE to improve the lives of families affected by rare conditions – making the journey smoother to better diagnosis, treatment, care and better life opportunities.

There are opportunities to provide all kinds of probono support , to develop partnerships with CamRARE to collaborate on projects, to co-run events and to do company fundraisers.

“Be the change you want to see in the world”

PayPal Donations

If you’d like to give a one-off donation using your PayPal account or with a debit or credit card, just click on  this section.  No fees are applied for us or you and gift aid is added where appropriate. Thanks for your support!

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Becky is running the Leicester Half Marathon in aid of CamRARE

This October, Becky will be running the Leicester Half Marathon in support of CamRARE, inspired by her nine-year-old niece, Maisey, who lives with the rare genetic condition MC4R. The condition means Maisey experiences constant, overwhelming hunger due to her brain not receiving the signal that she is full. Every mile of training is dedicated to her resilience and determination.

By fundraising for CamRARE, Becky hopes to help connect families affected by rare diseases with researchers working to improve understanding and develop better treatments. Every donation will support CamRARE’s mission to ensure that no family facing a rare condition feels alone and to create a future where people living with rare diseases receive the support they deserve.

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Cambridgeshire Community Lottery

CamRARE has signed up to the newly launched Cambridgeshire Community Lottery. This is run by the Cambridgeshire Community Foundation who work to support charities with funding.

The lottery is a fun and effective way for local charities and community organisations to fundraise and engage with supporters. The lottery enables people to support the causes they care about while having the chance to win something in return.

A ticket costs just £1 a week. 50p from every ticket will support the player’s chosen charity and another 10p will support other good causes across the county.

Players have a 1 in 50 chance of winning a prize each week, with a top prize of £25,000.

If you are able, please sign up for our Charity in the Cambridgeshire Community Lottery.

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Give As You Live Donations

If you’d like to join other super fundraisers in our community to give a one-off or a regular donation, or raise funds while you’re shopping online, you can do this through our Give As You Live page. Click this section to get started and good luck!!

Raise free funds through Give as you Live Online
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Community Fundraising

What could you do to help raise funds to support our rare community?

Nathan’s Ride London 2023 raises £1448!!

CamRARE advocate Nathan Chapman cycled the Ride London-Essex – a challenging 100-mile course on traffic-free roads that starts and finishes in central London and features a loop of the Essex countryside in between.

Nathan raisied an amazing £1448 for CamRARE (Cambridge Rare Disease Network) and our Unique Feet group which his family are members of. We’ve loved having Reuben, pictured right with his Rare Bear, and his family as part of our community and being there for them as they’ve been on their arduous journey towards a diagnosis. 

Reuben Unique Feet Undiagnosed
Montage of photos from past Shelford 5k events, including children at the warm up and a girl in a wheelchair buggy at the finish line.

Shelford 5k Fun Run 2025 raises £3,725 for CamRARE

CamRARE proudly co-hosted the family friendly Shelford 5k Fun Run and 5k Race in 2025, for the 3rd year with inclusive play champions Shelford Playscape!

We had a brilliant day and want to send a huge thank you to everyone who took part, volunteered and cheered!

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Rare Together

A huge thank you to all who donated as part of the BigGive Christmas Challenge

This December, during the Big Give Christmas Challenge (2-9 Dec), your donations were doubled, unlocking twice the support for families who need connection, community, and a place where their story is understood.

This is how we build change.

Rare Together

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Freewills.co.uk

We’ve partnered with FreeWills.co.uk to provide all our supporters with the opportunity to make their own fully comprehensive Will for free. You can make your personalised Will online in three simple steps, from the comfort of your own home and with live support from their Will specialists.