RAREsummit25 poster gallery
Meet the RAREsummit25 poster exhibitors who’ll be showcasing research and patient journey posters at the event.
The Generation Study – Process and Impact Evaluation
Rare Minds Matter – Mental Health and Rare Disease Survey
More Than You Can Imagine: An Anthology of Rare Experiences
Drug Discovery for Brain Tumours in NF2-related Schwannomatosis
Shining a Light on the Burden of Invisible Disorders
Patient Passport Addresses Unmet Needs of Rare Disease Patients
Understanding KAT6 Syndrome – KAT6 Foundation
Knowledge and awareness of rare diseases among healthcare professionals
An Extraordinary Story in Rare Diseases: Amicus working with the Rare Community
Rare4Schools – A Rare Disease Should Never Be A Barrier To Learning
Delays, Disconnects and Dischargees: Young People’s Realities in Healthcare Transition
Myotonic Dystrophy in the UK : CDM, ChDM, DM1 and DM2
Rare but not alone: support for carers at your fingertips.
Detection of Undiagnosed Gaucher Disease in Primary Care Electronic Health Records
Understanding FOP: exploring the science and current clinical trials
Living well with Noonan Syndrome
The State of Diversity, Equity, Inclusion, and Accessibility in Rare Disease Clinical Research in the United States
Characterizing Spillover Effects and Carer Burden in X-Linked Hypophosphatemia
The International PBS Summit: From Unmet Needs to Meaningful Solutions
Pregnancy Associated Osteoporosis (PAO) – A Rare Type of Osteoporosis
Establishing consensus on the key components of optimal transition from paediatric to adult care in sickle cell disease across Europe
