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Unique and innovative events

Our events programme provides a platform for change.

Cambridge Rare Disease Network creates forums for discussion, sharing knowledge, insights, opinion and experience.

Our events unite patients, advocates, and experts to address the challenges faced by people affected by rare diseases, encouraging community collaboration.

REmap stand at RAREfest


for The experts, the curious, for all ages, for everyone

CamRARE’s award winning and innovative rare disease inspired festival is as unique as the patients it champions. A public event packed with interactive exhibits, talks, panel discussions, a gallery and activities  for the whole family.

Featuring the brightest minds in rare disease research, the innovators of life-changing tech, the pioneers in rare disease medicine and the patients whose powerful voices must be heard. 

RAREfest is a biannual event driving an attitude change in how people perceive rare disease. It  provides the soil in which education, engagement, connections, collaboration and action can take seed and flourish. For the experts and the curious, for everyone.

Baroness Nicola Blackwood at RAREsummit19


& new directions  

What if we were able to share information with the power to revolutionise the current rare disease landscape?

What if we could provide solutions to patients now, answering their pressing questions about their disease, care, and treatment?

What if the expertise and experience of patients and advocates were mandatorily embedded in the development of drugs, assistive technologies, in diagnosis and healthcare?

RAREsummit is a biannual forum for all stakeholders who are leading the way in pioneering partnerships to accelerate change. We address these challenging questions and reimagine the future of rare diseases. 

RRD talks Feb 2019 at Addenbroke's

Events with partners

& expertise

CamRARE hosts and collaborates in a wide range of other events throughout the year to reach a diverse audience and amplify rare disease voices.

We bring rare disease themed sessions to mainstream events such as the international Pint of Science Festival,  One Nucleus life-sciences and healthcare events and PharmaIntegrates conferences.

We have partnered with Cambridge NIHR Bioresource,  Global Innovation Forum and Eastern AHSN to deliver joint events and activities for greater reach and impact.

Visit our events calendar below and join our mailing list to keep updated on  upcoming events.