Feeling the Way

Cambridge Rare Disease Network - RAREfest24 | Feeling the Way 1
Cambridge Rare Disease Network - RAREfest24 | Feeling the Way 2

Feeling the Way

This tactile map explores the intricate challenges in diagnosing rare mitochondrial diseases.

With forms inspired by mitochondrial DNA, layers of paint, gold leaf, and thread are woven into the canvas, mirroring the  complexities of the diagnostic journey. Bold threads contrast with fading ones, a metaphor for the uncertainty patients endure during misdiagnoses. Interruptions in the embroidered lines symbolise the gaps in healthcare information.

Some mitochondrial diseases such as ‘LHON’ come with vision loss and many affect energy levels.

You are invited to close your eyes and try to follow the stitches with your fingertips as a way to connect with daily struggles and
resilience of those living with mitochondrial disease.

Cambridge Rare Disease Network - RAREfest24 | Feeling the Way 3
kate baker

Artist – Kelly Briggs

Kelly Briggs navigates the intersection of art and science, delving into microscopic cellular intricacies and expansive cosmic realms.

With a keen eye for detail, she crafts visually striking pieces that prompt viewers to reconsider their place in the universe, offering a fresh perspective on the complexities of human existence.

Scientist – Heather Biggs

Cambridge Clinical Mitochondrial Research Group, The University of Cambridge

Mitochondrial diseases are genetic disorders affecting 1 in 5,000 people. They often cause progressive damage to the brain, eyes, muscles, heart and liver, leading to severe disability and a shorter life. They currently have no cure. MitoCAMB works towards better diagnosis and treatments.