Contact CamRARE

Contact CamRARE

Cambridge Rare Disease Network - RAREsummit25 | Speakers 29

Meet the Speakers of RAREsummit25

Talks, panel discussions and workshops. More coming soon…

Cambridge Rare Disease Network - Deborah Richards 1

Deborah Richards

VP & General Manager, Alexion AZ Rare Disease

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Cambridge Rare Disease Network - Nick Meade 2

Nick Meade

Chief Executive Officer, Genetic Alliance UK

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Cambridge Rare Disease Network - Sam Barrell 3

Dr Sam Barrell CBE

Chief Executive Officer, LifeArc

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Nicky Whiffin

Nicky Whiffin

Associate Professor, University of Oxford

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Cambridge Rare Disease Network - Ellen McDonagh 4

Dr Ellen McDonagh

Translational Informatics Director/Open Targets, EBI

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Cambridge Rare Disease Network - Siddharth Banka 5

Siddharth Banka

Professor of Genomic Medicine and Rare Diseases, University of Manchester

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Cambridge Rare Disease Network - Jonathan Roberts 6

Jonathan Roberts

Research Genetic Counsellor, E.Suffolk and N.Essex Foundation Trust

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Elizabeth Radford

Dr Elizabeth Radford

Paediatric Neurologist, Cambridge University

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Cambridge Rare Disease Network - James Oakley 7

James Oakley

Chief Executive Officer, Keep Me Breathing

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Laura Cowley

Laura Cowley

Research Lead, Patient Led Research Hub

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Cambridge Rare Disease Network - Duncan Foster Fitzsimons 8

Duncan Foster Fitzsimons

Designer, Director & Founder, 7TH London - Design & Invention

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Cambridge Rare Disease Network - Lucy McKay 9

Dr Lucy McKay

Chief Executive Officer, Medics for Rare Disease

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Cambridge Rare Disease Network - Will Harrison 10

Will Harrison

Director of Commercial Operations, Cambridge Cognition

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Evangelia Petsalaki

Dr Evangelia Petsalaki

Group Leader, European Molecular Biology Laboratory-EBI

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Cambridge Rare Disease Network - Jo Balfour 11

Jo Balfour

Managing Director, Cambridge Rare Disease Network

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Carlo Rinaldi

Prof. Carlo Rinaldi

Neurological Disorders Lead, Oxford-Harrington Rare Disease Centre

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Emma Green

Emma Green

Managing Director, Akmazo Health & Chair, CamRARE

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Shirlene Badger

Shirlene Badger

Global Lead for Patient Advocacy , Illumina Inc

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Cambridge Rare Disease Network - Sarah Dearman 12

Sarah Dearman

Chair and Trustee, The Children's Hyperinsulinism Charity

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Cambridge Rare Disease Network - Matthew Baker 13

Matthew Baker

Patient Advocate, & Founder of Hypersomnolence UK

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Cambridge Rare Disease Network - Alex Martin-Geary 14

Alex Martin-Geary

Postdoctoral Bioinformatician, University of Oxford

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Cambridge Rare Disease Network - Demetra Georgiou 15

Demetra Georgiou

Genomic Transformation Lead, Imperial College Healthcare Trust

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Cambridge Rare Disease Network - Scott Mardon 16

Scott Mardon

Founder, MyMedicalSupport & Rare Disease Father

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Cambridge Rare Disease Network - Crina Samarghitean 17

Crina Samarghitean

MD, UTA/CSAI4Health

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Cambridge Rare Disease Network - Gavin Hepherd-Hall 18

Gavin Hepherd-Hall

Founder, Rare4Schools

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Cambridge Rare Disease Network - Allison Watson 19

Allison Watson

CEO, Ring20 Research and Support

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A photo of Tom Staniford - a man with short light hair, facial hair and wearing glasses and a white and blue checked shirt.

Tom Staniford

CMO Special Projects, Outcome Path

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Cambridge Rare Disease Network - Lauren Roberts 20

Lauren Roberts

CEO, Rareminds

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Cambridge Rare Disease Network - Emma Davies 21

Emma Davies

Associate Director of Preclinical, Healx

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Cambridge Rare Disease Network - Tatty Scott 22

Tatty Scott

Stakeholder and Patient Engagement Recruitment & Retention Consultant for Clinical Trials

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Cambridge Rare Disease Network - Laura Hattersley 23

Laura Hattersley

Director, CASK Research Foundation

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Cambridge Rare Disease Network - Megan Pullein 24

Megan Pullein

Research Project Manager, Medics for Rare Disease

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Cambridge Rare Disease Network - Eleanor Thurtle 25

Eleanor Thurtle

Principal Consultant - Rare Diseases

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A photo of Scott Hutchings - head and shoulders shot of a man wearing a purple tshirt with the words CHAMP1 written on in white font.

Scott Hutchings

Chair of Trustees, CHAMP1 UK

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Loretta MacInnes

Loretta MacInnes

Patient Advocate & Trustee, Cambridge Rare Disease Network

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Cambridge Rare Disease Network - Stacey McGeown 26

Stacey McGeown

TA in QUB, Co-founder - EquiPath Analytics

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Cambridge Rare Disease Network - Max Fisher 27

Max Fisher RSci MRSB

Senior Research Associate, ViaNautis Bio

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Cambridge Rare Disease Network - Andy Kulina 28

Andy Kulina

Rare Disease Parent/Patient Advocate

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Kelly Kearley

Kelly Kearley

Charity Manager, PTENUKI & Psychotherapist

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