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Cambridge Rare Disease Network - RAREsummit26 | Speakers 20

Meet the Speakers of RAREsummit26

Talks, panel discussions and workshops. More coming soon…

Cambridge Rare Disease Network - Dr Elsie Makachiya 1

Dr Elsie Makachiya

Senior Public Involvement and Inclusion Manager, Health Innovation East; PPIE Lead, Eastern England Secure Data Environment (SDE)

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Cambridge Rare Disease Network - Dr Maxime Derisbourg 2

Dr Maxime Derisbourg

Ribogenyx

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Cambridge Rare Disease Network - Lauren Roberts 3

Lauren Roberts

CEO, Rareminds

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Cambridge Rare Disease Network - Isabelle Hall 4

Isabelle Hall

PhD Student, Cambridge Institute for Medical Research

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Cambridge Rare Disease Network - Anton Venhuizen 5

Dr Anton Venhuizen

Postdoctoral Researcher, Cambridge Institute for Medical Research

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Cambridge Rare Disease Network - Prof Lucinda Billingham 6

Prof Lucinda Billingham

Professor of Biostatistics, Cancer Research UK Clinical Trials Unit, University of Birmingham

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Cambridge Rare Disease Network - Stephanie Croker 7

Stephanie Croker

Rare Diseases Team Lead, Office for Life Sciences

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Cambridge Rare Disease Network - Dr Aida Moreno-Moral 8

Dr Aida Moreno-Moral

CEO, Enactium Biosciences

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Cambridge Rare Disease Network - Niveda Kiridaran 9

Niveda Kiridaran

Youth Advocate, Rare Diseases International Youth Leadership Programme / Founder and co-host, South Asian Women in Rare

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Cambridge Rare Disease Network - Dr Rich Gorman 10

Dr Rich Gorman

Assistant Professor in Ethics and Social Science, Brighton and Sussex Medical School

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Cambridge Rare Disease Network - Laurence Woollard 11

Laurence Woollard

Director, On The Pulse Consultancy

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Cambridge Rare Disease Network - Dr Juliette Harris 12

Dr Juliette Harris

Principal Genetic Counsellor/Researcher/Accredited Coach, National EDS Service London

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Cambridge Rare Disease Network - Jacqui Fish 13

Jacqui Fish

Patient advocate, Annabelle’s Challenge and the EDS Society

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Cambridge Rare Disease Network - Liz Walder 14

Liz Walder, PhD

Co-Founder, PhiZ & Co.

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Cambridge Rare Disease Network - Philippa Pristerà 15

Philippa Pristerà, PhD

Co-Founder, PhiZ & Co.

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Cambridge Rare Disease Network - Carina Thurgood 16

Carina Thurgood

CEO, Founder & Mother, The Maddi Foundation

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Cambridge Rare Disease Network - Steven Jones 17

Steven Jones

Patient Advocate, SMA

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Cambridge Rare Disease Network - Dr Alessandra Gaeta 18

Dr Alessandra Gaeta

Senior Director, Rare Diseases, LifeArc

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Cambridge Rare Disease Network - Jayne Hughes 19

Jayne Hughes BEM

CEO, Amy and Friends

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Jonathan Bracey

Jonathan Bracey

Founder, MVA Society

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Hannah Humphrey

Hannah Humphrey

Volunteer for TANGO2UK

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Tim Guilliams

Dr Tim Guilliams

CEO and Co-founder, Healx

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