Contact CamRARE

Contact CamRARE

Wellcome Genome Campus Conference Centre

#RAREsummit25: CamRARE at 10 – Connecting Moments 

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2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities.

Over the past decade, we have championed collaboration, amplified patient voices, and driven progress in rare disease research, policy, and innovation.

Through inspiring keynotes, dynamic discussions and workshops, and interactive networking opportunities, we will reflect on the past 10 years of impact while shaping the future of rare disease collaboration.

Relive the energy and impact of RAREsummit23 – watch the highlights film 

The RAREsummit programme is live

Head to the agenda tab to see the full programme for the day. Highlights include: CamRARE’s 10 Moments, RAREsummit Legacy in Action, Rare Disease Research Network Showcase, Breathing Life Into Existing Technology, Making Rare Disease Visible Globally, Digital Twins in Rare Disease, Through the Lens of Human Rights, Mental Wellbeing, The Next Decade of Innovation, Communicating Rare Diseases Through Passports, Should We Listen?, Naming Rare Genetic Diseases and  Generating Evidence.

The full programme
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Who will you connect with at RAREsummit25?

Being connected is critical in rare diseases and RAREsummit25 brings the right people together – thought leaders, researchers, healthcare professionals, industry pioneers, policy-makers and —most importantly—individuals living with rare conditions and the organisations that support and advocate for them.

What did RAREsummit23 delegates say about their summit experience?

The highlight of CamRARE’s RAREsummit is that they enable people like us to pitch their ideas to a wider audience.

Manfredi San Germano

Beyond Blood Diagnostics, Tech Innovation winner, RAREsummit23

We hear from industry experts that we don’t see every day. RAREsummit allows us to network and learn from each other.

Amit Ghose

Expert by Lived Experience, Motivational Speaker, RAREsummit23

RAREsummit has been really energising. What I’ve found most inspirational has been talking with the wonderful patients.

Joanna Davidge

Principal Business Manager, LifeArc. RS23

The RAREsummit gallery. Speakers, exhibitors, attendees

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