Montage of photos from previous Rare Summit events

RAREsummit26 • 7 October 2026 • Cambridge & Online

Rare summit 2026 logo

Where rare disease connections come to life

On Wednesday 7 October 2026, we will gather at the Wellcome Genome Campus for our 8th RAREsummit – a flagship CamRARE event gathering 300 great minds in rare diseases to make connections, exchange ideas and openly debate possibilities.

Cambridge Rare Disease Network - RAREsummit26 1

Meet, mingle, and make progress

Connection is critical to advancing progress in rare diseases.

RAREsummit26, hosted by CamRARE, brings together patients, advocates, experts, and leaders to address the challenges faced by people living with rare diseases.

By reflecting on progress, showcasing best practices and new developments, sharing knowledge and experiences, and identifying opportunities for collaboration, the summit aims to accelerate the journey toward better diagnosis, treatment, and support for patients and their families.

What to expect at RAREsummit26

Join us in person for a dynamic day of meaningful conversations, spontaneous introductions, and countless opportunities for cross-sector collaboration. Explore our vibrant marketplace of exhibitors and research posters, discover innovative solutions, and take part in interactive workshops designed to spark ideas and action. Because in rare disease, it’s the connections that create change – and they happen best when we’re together.

Nick Mead standing at the lecturn

Presentations & Panels

Close up photo of the panel on the stage. Tom is speaking and the others are looking towards him.

Interactive Workshops

Close up photo of the panel on the stage. Tom is speaking and the others are looking towards him.

Networking

Close up photo of the panel on the stage. Tom is speaking and the others are looking towards him.

Exhibits & Posters

Photo of the rare perspectives panel sitting on chairs on stage

RAREsummit25 Overview

Progress, Partnership, and Possibility

Take a look at the overview from last year’s RAREsummit to get a feel for what’s in store for 2026. One message echoed throughout the day: “real progress happens when partnerships endure.”

Read our blog

Costello Medical logo

RAREsummit26 Hybrid

If you can’t make it in person, fear not, as RAREsummit26 will also be available via live stream, allowing you to be part of the conversation wherever you are.

Online delegates will have access to all auditorium sessions and can actively participate in Q&As and live polls through the interactive online portal.

Be in the room – or join from afar – but don’t miss it!

Get involved in RAREsummit26

Get Involved

Join a panel, run a workshop, volunteer, become a partner

Sponsors

A huge thank you to our sponsors, grant funders and donors

Posters

Display your poster for our in person and online delegates

Tickets for both in-person and live stream are available now