Tom is a freelance marketing consultant and lecturer. Following a turbulent diagnostic journey, he was diagnosed with MDP syndrome in 2013, at 24 years old. This genetic condition affects how he processes fat, leading to hearing loss, diabetes, tight joints and no fat under the skin, amongst other symptoms. He is one of just 16 people worldwide with the condition and has spoken at conferences on patient engagement, rare diagnosis, research participation, and living with a rare condition. He was the youngest ever British National Para-Cycling Champion, has two Master’s degrees in Law and Psychology, and is a Chartered Marketer.