Support Services Manager, Alex TLC
Karen’s twin sons were diagnosed with ALD in 2004 and she joined the ALD Life team in 2013. As an ALD mum, Karen brings significant personal experience to supporting beneficiaries, and works with specialists to ensure best practice in treatments & awareness within the NHS. She regularly presents Alex TLC’s work and key messages to professionals and peers and is often requested as a speaker at conferences and events.
Advanced Therapies: : Navigating Challenges and Fostering Collaboration for Patient Access
Cell and gene therapies are changing the way we think about and treat rare diseases. We’ll ask “is there adequate service provision, staffing and infrastructure in place to deliver each and every gene therapy safely, effectively and efficiently?”