Lydia is a final year medical student at the University of Cambridge. She has been volunteering with CamRARE since the start of the pandemic in 2020, where she helped design a Hospital Passport for rare disease patients at a time when families were unable to join patients in hospital and specialist medical teams were redeployed.
Lydia has a Masters in Genomic Medicine and is actively involved in genomics research.
She is co-host of the educational podcast Genomics Unravelled and last year she founded the Cambridge University Genomic Medicine Society.
Lydia has presented her research as posters or platform presentations at several national and international conferences.
Previous advocacy work:
Lydia developed and lead The Cambridge Period Project, a student movement committed to alleviating period poverty and achieving menstrual equity within the university and wider community. Notably, she spearheaded a successful campaign that secured free menstrual product provision across the University of Cambridge.
Finding a Needle in a Haystack - panel discussion
Lydia will join Cam Uni student and fellow genomics podcast host, Angela Lochmuller, to host a panel of experts to respond to sound bites from people who have faced a challenging diagnostic odyssey, exploring how their various areas of expertise in genomics and intelligent technology can help unravel some of medicine’s most complex diagnostic challenges.
My three wishes for the future of rare diseases are:
- rapid access to diagnostic services
- easy and equitable access to clinical trials and novel therapies
- and improved coordination of multi-disciplinary care.