Katie is 20 years old and a current RARE Youth Project Intern at Rare Youth Revolution. She is currently leading Rare Youth Revolutions Genetics and Relationships Project. Living with multiple rare diseases herself (Ehlers-Danlos Syndrome and Chronic Intestinal Pseudo Obstruction), Katie finds great joy in advocating for others with rare disease. She has worked with multiple forums to help give the young person’s point of view and is particularly passionate about healthcare transition. This RAREfest, Katie will be helping with Rare Youth Revolution’s interactive session as exhibitors and will be speaking in the ‘Rare Youth Monologues’ live session.
