International Prader-Willi Syndrome Organisation
IPWSO: Prader-Willi syndrome
We are an international non-profit membership organisation supporting national Prader-Willi syndrome associations, as well as people with PWS, their families and the professionals who work with them.
As an international umbrella organisation we bring together the national Prader-Willi associations, and for countries where there are no formal associations, we support medical and parent delegates as part of our global community. IPWSO has contacts in over 100 countries, and is a world-wide parent-led support organisation. One of our key projects is to offer free diagnosis for PWS in countries where this is not available.