Page 6 - CamRARE | Unique Feet - Impact Report 2022
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Our Vision
A world where people with rare diseases are valued
and supported
Our Mission
We build cross-sector networks to improve
outcomes for people with rare diseases
OUR NET W RK C HARIT G O ALS
Y
O
Facilitating a voice for
and access to people
People living
with with rare disease
rare disease
Biomedical,
Health, social, ethical
education and and economic Providing educational
social care researchers and networking events
professionals
Supporting local people
Ind Industry: Rare disease with, and families
drug discovery, advocacy affected by, rare
re-purposing, groups conditions
technology
OUR EFF OR TS OUR HOP E S
F
Holding public-facing events: To improve the rare disease
RAREfest & Pint of Science journey from diagnosis to care
and treatment
Holding cross-sector
stakeholder events, summits To advance the rights of those
and Companies’ Forum with rare diseases and their
meetings
families
Our values:
We put those living with with rare conditions at the heart of everything we do.
We're creative, innovative and boldly challenge the status quo.
