The XLP Symposium 2020


XLP Symposium 2020 The XLP Research Trust aims to hold a research symposium every two years. The first meeting was in April 2010 and now planning our 2020 symposium immediately after the ESID 2020 conference. The symposiums look to bring together medical researchers and clinicians from across the world to present their latest research findings […]


Orphan Drugs, Rare Diseases Conference 2020


ICODRDC 2020: 14. International Conference on Orphan Drugs, Rare Diseases and Conditions The International Research Conference Aims and Objectives The International Research Conference is a federated organization dedicated to bringing together a significant number of diverse scholarly events for presentation within the conference program. Events will run over a span of time during the conference […]

Same but Different Coffee and Share talks


Same But Different Coffee & Share Talks Recognising there is considerable anxiety around the return to school, we have invited Megan Marks (Senior Clinical Psychologist) and Phoebe Dacre (Assistant Psychologist) to our Coffee and Share event on the 23rd July at 2pm BST. They are providing guidance and coping strategies on anxiety and how to […]

Getting involved in health research at NIHR Cambridge BRC


Health research at NIHR Cambridge BRC - curious about how to get involved? A 60- minute session for members of the public. The NIHR Cambridge Biomedical Research Centre is a partnership between the and Cambridge University Hospitals to support health research that makes a difference to the lives of patients. Join this information session to […]


Live podcast with Keith McArthur, Rare Disease Champion


Podcast Live Keith McArthur is one of the parents re-writing the rules for research in rare disease. Keith is CEO of the CureGRIN foundation, a non-profit backed by the Chan-Zuckerberg Initiative. Keith and his co-founder Denise Rehner believe that patients hold the power to accelerate research and drive progress, and that a cure for GRIN […]


ON Helix Digital 2020: Transforming New Medicine Discovery


  ON Helix|13-14 July 2020|Digital Going Digital - Expanded, Enhanced and Engineered We are grasping the opportunity of a digital delivery format to in order to bring participants the combination of: Expanded depth of content – including live streaming, KOL interviews, innovation showcase, business workshops and more Enhanced connectivity - all participants will be able to view and […]


Digital Event on Orphan Drugs and Rare Diseases, 9-10 July 2020


The Orphan Drug Act (ODA) established in 1983 compelled producers to expand scale to treat uncommon/orphan diseases, and the orphan drug panorama has advanced drastically. Approvals for orphan drugs has doubled in the past decade, and there are over 500 applicants in the pipeline for orphan diseases. “Markets and Markets Digital Event on Orphan Drugs […]

CRED Regulatory Strategies for Orphan Drugs 2020


Orphan Drugs: Optimising Regulatory Strategies  There are regulatory processes and procedures to expedite approval and access, and to help support the development of medicines for the treatment of rare diseases. This course will provide key information about those regulatory processes and first-hand insights on how to get the best out of them. When: 25 June […]


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