Contact CamRARE

Contact CamRARE

Advice and Resources

We set up the Unique Feet community to unite families with shared experiences of living with a rare or undiagnosed condition. Over time these families shared advice and stories about how best to raise their children as well as the challenges they faced. We have listened to their experiences and tried to find the answer to common questions posed by our rare disease community. Below is a list of resources we have made with their help to address the common challenges that arise from raising a child with a rare condition. 

Unique Feet kids

Archive

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Financial
Advice
→

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Genetic
Testing →

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Education, health & care plans →

DNA structure CGI image. Researching the rare

Growing up &
Moving out →

Unique Feet at RAREfest

Inclusive Activities
for all abilities →

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Tips from our
community →