How to help raise funds for


If you’d like to give a one-off or a regular donation,  or  raise funds through a sponsored event or your own fundraiser, you can do so through our Just Giving page.  You can sign up to our Just Giving page here or click the button below to leave a donation. The tools for setting up your own linked fundraising page are available through the site and donation  and gift aid  collection is all done for you.

Thanks to all of those who have given donations to support our activities, and to those who’ve done great fundraisers and used Just Giving to collect donations.


Cambridge Half Marathon


We are over the moon to have 5 runners for our first Cambridge Half Marathon. We’ll introduce you to them soon and they’ll shortly be setting up their fundraising pages.

Fundraising for CRDN

Thanks to our courageous and determined supporters!

Fundraising projects can be set up on our Just Giving page where you can tell your fundraising story and your supporters can add their messages, donations and gift aid.  Stuck for ideas? Read the some examples below to inspire you…


Inspired by Helena Baker, a previous speaker at our Rare Nursing event, six incredible ladies jumped out of a plane with parachutes for CRDN. Helena was diagnosed late with a rare condition and following many operations over her lifetime,  has had a recent lower leg amputation. They raised around £5,000 to support our Rare Disease Nurse Network project to get off the ground.  You can read Helena’s fundraising story here. 

100 mile run

Chris Cawthorn from Cambridge Trailfinders ran an astounding 100 miles in less than 24hrs along the North Downs Way for CRDN. An incredible feat from a dedicated runner who often runs the 18 miles to work and back! Chris has no know connection with rare disease but was inspired by our children’s activity group, Unique Feet, to fundraise to support their activities. He raised just under £800! Read Chris’s fundraising story here.

unique feet dance project
We launched a crowdfunding campaign to raise funds for our Unique Feet children’s group to take part in a creative dance project to showcase at the launch event of RAREfest.  They raised over £1000 towards this through cake bakes, car-washing and quizzes and they dazzled us on stage on 30 Nov.  Read their crowd funding story  here.

If you’d like to give a one-off  donation please click the yellow “Donate” button


Raise 5p for CRDN for every mile you walk, run or cycle & even pottering around the house!

Collect used stamps

Contact us for more details on how you can help us raise vital funds with used postage stamps

Join CRDN on
Jeans for Genes Day

Apply for your free fundraising pack

Did you know that half a million children in the UK are affected by a life-altering genetic disorder?

Jeans for Genes Day is an annual fundraising campaign, organised by Genetic Disorders UK (GDUK), to raise awareness and money to transform their lives. This year’s event will take place on Friday 21st September and smaller genetic disorder charities like CRDN are partnering with GDUK to help them spread the word. In return, they generously split the proceeds to support the work of both charities.

Would your school or workplace like to get involved in this year’s Jeans for Genes Day to support us? We’d be absolutely delighted!

As hundreds of schools and workplaces take part each year, this is a great way for your pupils and colleagues to feel like an important part of the wider movement to end genetic disorders. For schools, it is also an opportunity for you to educate your students about the science of genetics, to promote equality, and to highlight the importance of charity and social responsibility. There are lots of great resources on the GDUK website. Find plans for lessons, assemblies and activities and use their great ideas for fund-raising .

How to get your school or workplace involved …

  • Sign up on the official GDUK page
  • Choose Cambridge Rare Disease Network as your partner from the drop-down list
  • Advertise your partnership through social media, websites and newsletters
  • Get your pupils or colleagues to wear jeans on the day in exchange for a small personal donation
  • Create your own fundraisersbake cakes, organise a quiz, check out the website for ideas or come up with your own 
  • Transfer the proceeds to GDUK and they’ll share half with us

How will we invest your fundraising to help those with rare conditions?

  •  Developing a regional network of people living with a rare condition 
  • Providing fun activities for our Unique Feet children and families group
  • Delivering exceptional educational and networking events

Can you and your team or school help us make this happen? If you have any questions about CRDN or Jeans for Genes Day get in touch by email. Thanks for your support!

If we all got involved, imagine the difference we could make? Don’t just follow us, interact with us and join our thriving rare disease community! There’s lots of ways right here to begin your journey with us…

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