RAREfest20 will bring you the brightest minds, life-changing innovators and powerful patient voices to share the best ideas with engaged and diverse audiences from around the world. There are speakers and exhibitors of all ages and activities for all to enjoy. Come and join us on 28 Nov and join in the fun.
The stories behind the faces
‘Thank you to Same But Different for sharing these wonderful images and to the individuals for sharing their stories. Find out more out their work and the individuals involved at www.samebutdifferentcic.org.uk/rareawaregallery
FFion & Poppy
Noah & Freddie
It’s almost showtime! Let’s meet some of the speakers
Dr Giles Yeo
Meet the DNA Doc – Dr Melita Irving
At RAREfest20 Melita will be doing a live DNA extraction, not on a human (phew!) but on a strawberry. She’ll be interviewed by Dr Lucy Mackay from Medics4RareDiseases, a charity that drives an attitude change towards rare diseases amongst medical students and doctors
We caught up with Melita ahead of RAREfest20 to talk all things DNA…
Read our interview with Melita here.
Dana Perella – Every Cookie is Hope
Together with other parents, these three came together to create the award-winning and moving short film “A Journey of Hope“. Find out more about the film below and take a glimpse at what’s to come.
A Journey of Hope – Enabling the New Possible
Sarah Lippett – A Puff of Smoke
Cecily Morrison – Inclusive Design
Cecily Morrison is a principal researcher at Microsoft Research in Cambridge. She leads a multi-disciplinary team that innovates new technologies to enable people.
Last month Cecily was awarded an MBE for services to inclusive design. She and her team are exhibiting at RAREfest20.
Read our interview with Cecily here.
Get your ingredients ready for the DNA Doc
A live DNA extraction with the DNA Doctor – not on a human, but a strawberry!
120 ml water, 1 cocktail stick, 3-4 ripe strawberries, 1 ziplock bag, 1/2 teaspoon of salt, 2 teaspoons of washing up liquid, 1 coffee filter, rubbing alcohol, 2 glass containers.
Bake your cookies – recipe now available
Cookies4Cures will be demonstrating a live cookie decorating activity at RAREfest20 on Saturday 28th November at 15:00.
You’ll need to bake your cookies ahead of time, allow them to cool and prepare your icing ingredients so that you have everything ready for the live demo.
Download the recipes here.
Introduce yourself with Sarah Lippet’s drawing activity
Artist and author Sarah Lippett AKA Crayonlegs will be exhibiting at RAREfest20 this SAturday 28th November. She has prepared a fabulous drawing activity for the kids.
Download the worksheet here or head over to Sarah’s booth and get a copy. Grab your colouring pens and pencils and get arty! Share your pictures with Sarah and CRDN – we’d love to see them!