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WGC Conference Centre
RAREsummit23 date and venue logo

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RAREsummit23 – leading the way in patient centred collaboration to improve outcomes for those living with rare conditions
A platform for change

CamRARE’s RAREsummit23 is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain.

On 12th October 2023, we will hold our 6th RAREsummit – a flagship CamRARE event gathering over 300 great minds in rare diseases to make connections, exchange ideas and openly debate possibilities. 

More than an event

RAREsummit is more than an event – it’s where the magic happens. A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.

RAREsummit23 is back in person again and we can’t wait to see the sparks fly from exciting an productive conversations between patient and industry representatives, healthcare professionals and researchers. 

Exhibitor zone

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Talks and panel discussions with Q&A

Poster gallery

Build your network through ours

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Specialist breakout workshops

Dragon’s den tech solutions pitching

What if?

What if we were able to share information with the power to revolutionise the current rare disease landscape? What if we could provide solutions to patients now, answering their pressing questions about their disease, care, and treatment? What if we could ensure that patients and advocates played an equal and vital role in the development of drugs, assistive technologies, healthcare and policy? Rare disease patients and their families are tired of waiting for answers and the slow pace of change. They want to be involved and share their lived experiences to help companies, researchers, healthcare professionals and policy-makers find answers and solutions. Hear from,  learn from and engage in cross-sector activities with a range of stakeholders: patients; patient advocacy groups; researchers; health care professionals, tech and pharma companies who are leading the way in pioneering partnerships to accelerate change.

Join us at the Wellcome Genome Campus: a hub of life-changing science. We think it’s the perfect venue to make progress for rare diseases.

RAREsummit19 Hackathon: collaboration
Baroness Nicola Blackwood at RAREsummit19

The aims of RAREsummit23

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Cambridge Rare Disease Network - RAREsummit23 1
to raise awareness of rare conditions and their impact

to showcase exemplars of impactful collaboration between stakeholders, with patients at the heart

to bring all stakeholders in rare diseases together as equals to drive patient group, researcher and industry partnering opportunities

to give stakeholders the knowledge and skills to ensure their practices involve patients and their advocates as essential partners

to improve the lives of rare disease patients, together, with greater efficiency, collaboration and success

Why attend? Learn something new, be inspired, meet people, add value, collaborate

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build your network with 300+ biotechnology, pharma and startup leaders,  innovators, patients and patient group CEOs, healthcare professionals, policy-makers, CROs, researchers, investors and students assembled

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meet, mingle and hold crucial discussions with potential partners from local and global arenas

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take away practical strategies and fresh ideas to embed into your own work

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take part in interactive workshops and Dragon’s Den style tech solutions sessions, as an innovator or an audience ‘judge’

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hear from and put questions to key opinion leaders

What did you say were the benefits of attending?

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Cambridge Rare Disease Network - RAREsummit23 12

Who attends RAREsummit? Take a look at a selection of previous attendees

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Sponsor RAREsummit23

Support CamRARE’s efforts to improve outcomes for those affected by rare conditions and fulfil on your companies
corporate and community responsibilities.