Countdown to RAREsummit23
RAREsummit23 – leading the way in patient centred collaboration to improve outcomes for those living with rare conditions
A platform for change
CamRARE’s RAREsummit23 is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain.
On 12th October 2023, we will hold our 6th RAREsummit – a flagship CamRARE event gathering over 300 great minds in rare diseases to make connections, exchange ideas and openly debate possibilities.
More than an event
RAREsummit is more than an event – it’s where the magic happens. A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.
RAREsummit23 is back in person again and we can’t wait to see the sparks fly from exciting an productive conversations between patient and industry representatives, healthcare professionals and researchers.
Talks and panel discussions with Q&A
Build your network through ours
Specialist breakout workshops
Dragon’s den tech solutions pitching
What if we were able to share information with the power to revolutionise the current rare disease landscape? What if we could provide solutions to patients now, answering their pressing questions about their disease, care, and treatment? What if we could ensure that patients and advocates played an equal and vital role in the development of drugs, assistive technologies, healthcare and policy? Rare disease patients and their families are tired of waiting for answers and the slow pace of change. They want to be involved and share their lived experiences to help companies, researchers, healthcare professionals and policy-makers find answers and solutions. Hear from, learn from and engage in cross-sector activities with a range of stakeholders: patients; patient advocacy groups; researchers; health care professionals, tech and pharma companies who are leading the way in pioneering partnerships to accelerate change.
Join us at the Wellcome Genome Campus: a hub of life-changing science. We think it’s the perfect venue to make progress for rare diseases.
The aims of RAREsummit23
to showcase exemplars of impactful collaboration between stakeholders, with patients at the heart
to bring all stakeholders in rare diseases together as equals to drive patient group, researcher and industry partnering opportunities
to give stakeholders the knowledge and skills to ensure their practices involve patients and their advocates as essential partners
to improve the lives of rare disease patients, together, with greater efficiency, collaboration and success
Why attend? Learn something new, be inspired, meet people, add value, collaborate
build your network with 300+ biotechnology, pharma and startup leaders, innovators, patients and patient group CEOs, healthcare professionals, policy-makers, CROs, researchers, investors and students assembled
meet, mingle and hold crucial discussions with potential partners from local and global arenas
take away practical strategies and fresh ideas to embed into your own work
take part in interactive workshops and Dragon’s Den style tech solutions sessions, as an innovator or an audience ‘judge’
hear from and put questions to key opinion leaders