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Cambridge Rare Disease Network - RAREsummit21 | review 1

DOWNLOAD the full RARefest20 review

Delve into this beautifully illustrated and fascinating review of the RF20 highlights from 28 Nov 2020. A truly collaborative review with a wealth of feedback, event reports written by attendees from around the world.

“This was a fabulous day; very well organised and thought provoking!”
Noonan Syndrome Association
Cambridge Rare Disease Network - RAREsummit21 | review 2

Over 25 young people did live quizzes, demos, performance and panel discussions.  Dana, Cookies4Cures founder from the USA, joined us for a live cookie decorating demo and to talk to us about how she’s raising funds for rare disease research, giving hope one cookie at a time. Meet all of the 36 speakers who took part.

An image of the virtual atrium of the RAREfest20 virtual platfrom with brightly coloured banners, and information desk and animated people moving around. Graphics show images of people and themes from the event

RAREfest20 took place on an interactive virtual platform. Images from the festival atrium and auditorium

A section of RAREfest20 virtual exhibition hall  showing 4 exhibit stands with banners and posters and a backdrop drop photo of the rooftops of Cambridge

21 science, technology, advocacy and arts organisations from the UK, Europe and the USA hosted exhibition stands with interactive content, fun experiments, cool facts and information and opportunity to chat to the experts behind the stand. 

Catch up on RAREfest20 live

Watch RAREfest20 talks, demos, panel discussions, and quizzes recorded from the live event.


thought the organisation was very good or excellent


thought RAREfest20 was very good or excellent


made good connections which could prove fruitful in the future


are more interested in rare disease after RAREfest20


had never attended a rare disease event before

“The platform was fantastic.
Well organised exhibitions and I loved the “swag bag” aspect and the fact that it was still available online for a period of time after the event so I could re-watch and revisit. Obviously there was a lot to take in on one day so this was a wonderful addition to your event.”
Allanna Anderson
“All the talks &
presentations I attended were
great, but the talk around the film ‘Journey of Hope’ was particularly emotive, poignant and inspiring. Each of the talks I attended inspired me to look into specific areas around rare disease further.”
Andrea Reid-Kelly, Noonan Syndrome Association and Together
Cambridge Rare Disease Network - RAREsummit21 | review 3
Cambridge Rare Disease Network - RAREsummit21 | review 4
Cambridge Rare Disease Network - RAREsummit21 | review 5
It was such an amazing event,
so well organised. So much varied content. Really, really gripping, moving, exciting, inspiring, colourful, insightful and a million other thoughts and feelings.
Anna Todd
Cambridge Children’s
Cambridge Rare Disease Network - RAREsummit21 | review 6
The word RARE in capitals filled with photos of RAREfest20 speakers and performers
Overall my favourite thing
was how brilliantly RAREfest
was adapted to a virtual platform.
It was also great that you got sponsorship for the poster gallery and were so supportive when I submitted the new MdDS poster.
Polly Moyer, Action for Mal de
Debarquement Syndrome

RAREfest20 was generously sponsored by 

Evolution Education Trust logo
Healx Logo
Illumina logo
Alexion logo RRfest20 sponsor
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SOBI logo
LifeArc logo