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Join 300 of the greatest minds in rare disease

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Did you miss it? Join the On Demand event!

Available for 30 days until 7 Nov 

A platform for change

CRDN’s RAREsummit21 is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain.

On 7th October 2021, we will hold our 5th RAREsummit – a flagship CRDN event gathering over 300 great minds in rare diseases to make connections, exchange ideas and openly debate possibilities. 

More than an event

RAREsummit is more than an event – it’s where the magic happens. A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.

RAREsummit21 is virtual, accessible to all, a global experience and available to ticket holders for 30 days following.

RAREsummit21 on demand
student feedback RAREsummit21

Countdown to end of On Demand RAREsummit21

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Cambridge Rare Disease Network - RAREsummit21 1

CRDN’s RAREsummit meeting was a fantastic opportunity for stakeholders across the spectrum to come together, share ideas and build on each other’s insights and experience. The day was remarkable for the spirit of collaboration and the willingness to work together was displayed by all.

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Alastair Kent, rare disease policy & patient engagement expert

Interactive exhibition zone

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Talks and panel discussions with audience participation

Poster and film gallery

Build your network through ours. Meet experts & each other

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Specialist breakout workshops

Global audience. No travel. Accessible. Eco friendly

Interactive exhibition zone

w

Talks & panel discussions with Q&A

Poster & film gallery

Build your network through ours

l

Specialist breakout workshops

Global audience. No travel. Accessible

The aims of RAREsummit21
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to raise awareness of rare conditions and their impact

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to showcase exemplars of impactful collaboration between stakeholders, with patients at the heart
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to bring all stakeholders in rare diseases together to drive patient group, researcher and industry partnering opportunities
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to give stakeholders the knowledge and skills to ensure their practices involve patients and their advocates as essential partners

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to improve the lives of rare disease patients, together, with greater  efficiency, collaboration and success
CRDN Trustees Sarah and Gemma at RAREsummit19
Some of the exhibition stands at RAREsummit19 (Image credit: Healthcare & Biotech Photography)
Panel discussion at RAREsummit19
Andy Richards and Jonathan Milner at RAREsummit19 (Image credit: Healthcare & Biotech Photography)
Panel discussion at RAREsummit19
Some of the exhibition stands at RAREsummit19 (Image credit: Healthcare & Biotech Photography)
Why attend? Learn something new, be inspired, meet people, add value, collaborate
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build your network with 300+ biotechnology, pharma and startup leaders, abs innovators, patients and patient group CEOs, healthcare professionals, policy-makers, CROs, researchers, investors and students assembled
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meet, mingle and hold crucial discussions with potential partners from local and global arenas

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take away practical strategies and fresh ideas to embed into your own work

Cambridge Rare Disease Network - RAREsummit21 3
Cambridge Rare Disease Network - RAREsummit21 3

take part in interactive workshops and watch Dragon’s Den -style pitching sessions

hear from and put questions to key opinion leaders

Cambridge Rare Disease Network - RAREsummit21 1

I was really proud to represent haemophilia among 50 other rare and chronic conditions in the room! It’s events like this where I personally can identify with the true essence of advocacy and empowerment. As patient activists and leaders, we need to ensure key messages around optimising care and holistic support transcend from the conference to the community at a grassroots level.

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RAREsummit speaker, Laurence Woollard, Haemophillia patient and advocate

Cambridge Rare Disease Network - RAREsummit21 1

There is something very powerful about those with rare disease (or affected by one) creating their own future. To me, this conference was a testament to the power and energy of patients and their families doing just that.

Cambridge Rare Disease Network - RAREsummit21 2

RAREsummit19 speaker, Cecily Morrison, Microsoft Research

RAREsummit21 sponsors logos

A huge thank you to all of our RAREsummit21 sponsors and supporters. Your support enables us to challenge the status quo in rare diseases,  showcase great work from around the world and ensure that costs are kept low for patients and patient groups to attend at minimal expense. 

RAREsummit development and operational team
Jo Balfour CRDN Managing Director - profile pic

Jo Balfour
Managing Director

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Lindsey Brown
Events consultant

CRDN trustee and RAREsummit advisory team
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Dr. Gemma Chandratillake
Chair & genomics ed expert

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Dr. Tim Guilliams
Founder, trustee & biotech CEO

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Dr. Sarah Leiter
Trustee & medical doctor

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Dr. Jonathan Milner
Trustee & biotech entrepreneur

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Dr. Ron Jortner
Trustee & biotech CEO

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Sue Berry
Trustee & rare disease parent

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Ilan Chaitowitz
Trustee, treasurer and equity investor