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Cambridge Rare Disease Network - RAREsummit21 1

early bird tickets on sale now

EBs until  the end of July!

Book your place today
A platform for change

CRDN’s RAREsummit21 is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain.

On 7th October 2021, we will hold our 5th RAREsummit – a flagship CRDN event gathering over 300 great minds in rare diseases to make connections, exchange ideas and openly debate possibilities. 

More than an event

RAREsummit is more than an event – it’s where the magic happens.  A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.

RAREsummit21 is virtual, accessible to all, a global experience and available to ticket holders for 30 days following.

RAREsummit attendees Alastair Kent

Countdown TO RAREsummit2021

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CRDN’s RAREsummit meeting was a fantastic opportunity for stakeholders across the spectrum to come together, share ideas and build on each other’s insights and experience. The day was remarkable for the spirit of collaboration and the willingness to work together was displayed by all.

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Alastair Kent, rare disease policy & patient engagement expert

Interactive exhibition zone

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Talks and panel discussions with audience participation

Poster and film gallery

Build your network through ours. Meet experts & each other

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Specialist breakout workshops

Global audience. No travel. Accessible. Eco friendly

Interactive exhibition zone

w

Talks & panel discussions with Q&A

Poster & film gallery

Build your network through ours

l

Specialist breakout workshops

Global audience. No travel. Accessible

The aims of RAREsummit21
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to raise awareness of rare conditions and their impact

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to showcase exemplars of impactful collaboration between stakeholders, with patients at the heart
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to bring all stakeholders in rare diseases together to drive patient group, researcher and industry partnering opportunities
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to give stakeholders the knowledge and skills to ensure their practices involve patients and their advocates as essential partners

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to improve the lives of rare disease patients, together, with greater  efficiency, collaboration and success
CRDN Trustees Sarah and Gemma at RAREsummit19
Some of the exhibition stands at RAREsummit19 (Image credit: Healthcare & Biotech Photography)
Panel discussion at RAREsummit19
Andy Richards and Jonathan Milner at RAREsummit19 (Image credit: Healthcare & Biotech Photography)
Panel discussion at RAREsummit19
Some of the exhibition stands at RAREsummit19 (Image credit: Healthcare & Biotech Photography)
Why attend? Learn something new, be inspired, meet people, add value, collaborate
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build your network with 300+ biotechnology, pharma and startup leaders, abs innovators, patients and patient group CEOs, healthcare professionals, policy-makers, CROs, researchers, investors and students assembled
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meet, mingle and hold crucial discussions with potential partners from local and global arenas

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take away practical strategies and fresh ideas to embed into your own work

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Cambridge Rare Disease Network - RAREsummit21 4

take part in interactive workshops and watch Dragon’s Den -style pitching sessions

hear from and put questions to key opinion leaders

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I was really proud to represent haemophilia among 50 other rare and chronic conditions in the room! It’s events like this where I personally can identify with the true essence of advocacy and empowerment. As patient activists and leaders, we need to ensure key messages around optimising care and holistic support transcend from the conference to the community at a grassroots level.

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RAREsummit speaker, Laurence Woollard, Haemophillia patient and advocate

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There is something very powerful about those with rare disease (or affected by one) creating their own future. To me, this conference was a testament to the power and energy of patients and their families doing just that.

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RAREsummit speaker, Cecily Morrison, Microsoft Research

Live talks and debate at RAREsummit19

To get a flavour of what’s to come, delve into live talks highlights from RAREsummit19, check out the event review and stats here or download the RAREsummit19 report.

View a selection of some of the RAREsummit19 talks and testimonials below and for the full selection, visit our YouTube channel.

Disruptive technologies: Patients at the heart of AI panel discussion. Chair Dr Tim Guilliams, Healx

Baroness Nicola Blackwood, Health Innovation Minister: A national conversation on rare disease

Patient Group exhibitor testimonial: Alan Thomas from Ataxia and Me

Laurence Woollard, On the Pulse Consultancy: Haemophillia. Peer-Led to Get Ahead. 

RAREsummit development and operational team
Jo Balfour CRDN Managing Director - profile pic

Jo Balfour
Managing Director

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Lindsey Brown
Events consultant

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Suzanne Morris
Graphic and website designer

CRDN trustee and RAREsummit advisory team
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Dr. Gemma Chandratillake
Chair & genomics ed expert

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Dr. Tim Guilliams
Founder, trustee & biotech CEO

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Dr. Sarah Leiter
Trustee & medical doctor

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Dr. Jonathan Milner
Trustee & biotech entrepreneur

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Dr. Ron Jortner
Trustee & biotech CEO

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Sue Berry
Trustee & rare disease parent

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Ilan Chaitowitz
Trustee, treasurer and equity investor