Patient Worthy

Rare Patient News, Well Done

Patient Worthy – Rare Patient News, Well Done

Patient Worthy® is an online publication that provides relevant information to rare disease patients, caregivers and advocates alike.

We connect those impacted by rare conditions with educational resources, advocacy groups, and news updates regarding rare disease research from across the globe. What does rare disease patient advocacy mean to you?

At Patient Worthy, if we are not learning to live with a chronic illness or rare disease ourselves, we are loving or working with someone who is. It is through this perspective, research and our passion for rare disease awareness that we bring you Rare Patient News. Well Done.®

Want to tell us about your “patient worthy” experience? We share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Join us, by telling us a little bit about yourself!

Click to visit Patient Worthy’s’ website.