Bio: Kerry joined ASUK in 2004 when her son was diagnosed with the condition. She is the National Development Manager, responsible for overseeing the Family Support Service and works closely with their medical teams in Birmingham, working in partnership to deliver NHS highly specialised multidisciplinary clinics.
Kerry is also Project Lead for Breaking Down Barriers, a network of organisations, working together to develop supportive and inclusive services for people from ethnic minority communities.
Kerry is involved in various UK, EU and global projects focussing on patient engagement in clinical trial designs and drug development including:
● CIOMS XI working group developing guidelines on patient involvement in the development and safe use of medicines
● A member of the Patient Safety Communication Advisory Panel at Bayer Healthcare and Pharmaceuticals

She is a patient representative on the UK Rare Disease Policy Board and co-applicant on
NIHR funded research studies, experienced in patient and public involvement.

Find out more about Alstrom Syndrome UK by visiting their website.