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John Lee Taggart
Communications & Campaigns Manager, Niemann-Pick UK
Bio: John has worked in the rare disease field for over five years, primarily with the small charity Niemann-Pick UK (NPUK), its sister organisations, and other related rare disease groups. With a focus on creative and community collaboration he has helped develop a number of campaigns alongside his team to push for better support, funding, and general awareness of Niemann-Pick diseases – most notably as Executive Producer on the multi-award winning short film, Go Make Memories (2019). More recently he has been assisting with content creation for the ArchAngel Newborn Screening Alliance, helping to further progress awareness of the International Niemann-Pick Disease Registry, and is also working on a new short film, Invisible Manners, which will be released later this year.
Find out more about Niemann-Pick UK by visiting their website.