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Jess Duggan

Patient Advocate & Volunteer, SynGAP Research Fund

Tim Ringrose

Bio:

Jessica Duggan is a British Citizen based in New York City.  She has over 15 years
experience working in professional services and banking technology in London, Tokyo, Sydney, and NYC. She holds a Master’s degree in Science and Technology Studies from the University of Edinburgh and a Bachelor of Science in Computer Science from the University of Sussex. Jessica’s 3 year old daughter received a genetic diagnosis of SYNGAP1 in 2019 after having previously been diagnosed with Autism Spectrum Disorder. She is a parent advocate and volunteer with the SynGAP Research Fund.

Find out more about SynGAP Research Fund by visiting their website. 

Jess will be joining Emma Sutcliffe of Prime Global to share her recent experience of creating a Patient Voice Publication in collaboration with this Medical Communications company to help amplify their communities voice with pharma. You can find the PVP poster in the RAREsummit21 virtual gallery.