CamRARE’s RAREsummit21 is the infrastructure that unites patients, advocates, experts and leaders to address the challenges faced by people affected by rare diseases. By sharing knowledge and experience, the journey towards better diagnosis, treatment and support for patients and their families is smoother and more certain. Join us and over 300 great minds in rare disease on 7th October.
Over the coming weeks we’ll be sharing some of the summit highlights with you to help set the scene for the 7th October. Keep checking back to see who’ll be taking part and what we have in store.
Eastern Academic Health Science Network Innovation Challenge brings LIVE DRAGon’s den pitching to RAREsummit21!!
CamRARE has partnered with the Eastern Academic Health Science Network [EAHSN] in order to understand where innovation can improve the lives of people living with rare diseases. EAHSN has gathered valuable insight from the rare disease community, and are now looking for innovative solutions that can meet these challenges. Their Innovation Challenge has now closed and the judging panel are pouring over the 17 unique entries from companies and innovators . Five winning entries will pitch their solutions live six RARE Dragons at RAREsummit21 on 7th Oct.
#RAREsummit21 – Spotlight on how we can create positive industry and patient group partnerships
One of the key areas we’ll be exploring is how far patient group and industry relationships have come – and why collaboration between the two is so vital in driving forward progress in rare diseases. Through a mixture of panel discussions, fireside chats, workshops and live pitching sessions, we’ll be sharing some inspirational examples of how advocacy groups and companies have been working together to achieve fantastic results.
In our recent blog post on this theme, we shared some insights and conversations with those taking part.
Read our blog here to find out more about which companies and patient groups will be taking part and what they have to say. To see them in action on the day and have a chance to network with them BOOK HERE
Seeing beyond the diagnosis – a virtual exhibition that puts a face to rare diseases
When Patricia Weltin first put a call out for artists to paint portraits of children with rare diseases to share with the medical community, she had no idea how quickly the project would grow into a ground-breaking exhibition involving more than 70 artists and 135 children around the globe. Now Patricia is bringing a virtual gallery of these poignant portraits to the Cambridge Rare Disease Network’s #RAREsummit21 on 7 October 2021. And it’s Patricia’s goal to make sure many thousands more people see this thought-provoking exhibition too.
Read our latest blog article on Beyond the Diagnosis.