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Dr Femida Gwadry-Sridhar

Chief Executive Officer and Founder, Pulse Infoframe

Femida Gwadry Sridar Pulse Infoframe

‘Can we successfully run clinical trials without placebos?’

Bio: Femida is a pharmacist, clinical epidemiologist, and methodologist with over 25 years of experience in clinical trials, patient registries, knowledge translation and clinical disease outcomes. It was the challenges she witnessed in academia & research that encouraged her to start Pulse Infoframe with a focus on a collaborative approach to research, building networks of stakeholders from patient groups, sponsors, and researchers to solve the mysteries around drug development. Recently recognized as a fellow of CIHR for her contributions to global research. Femida has published over 200 manuscripts and abstracts and continues to support research to improve the lives of patients.

Find out more about Pulse Infoframe by visiting their website.

Q: This will be CamRARE’s 5th summit. What is the most impactful and promising change you’ve seen happen in rare disease progress in the last 5 years?

Rare disease communities developing data sets that can be used by industry. 

Q: How has your work impacted rare disease progress over the last 5 years?

We have developed numerous rare disease patient registries which are developing new treatments

Q: What next? What do you want to see happen or change in the next 5 years that will have the most impact on diagnostics, care or treatment for those affected by rare conditions?

Industry to work closely with PAGs.