Bio: Dr Charles Steward is the Patient Advocacy and Engagement Lead at Congenica, a software company that assists clinicians and researchers to understand the genetic basis of rare diseases. He has more than 27 years’ experience working with the human genome on the Wellcome Genome Campus, Cambridge, UK. He spent 22 years at the Wellcome Sanger Institute, which is where he did his PhD and led the initial gene analysis for human chromosome 10.

Dr Steward is also a carer for his two young children, both of whom have severe cerebral palsy, one of whom also has epilepsy. He, his wife and two children have had their genomes sequenced through different genome studies in the UK, but nothing has yet been found to explain their challenges.

Find out more about Congenica by visiting their website.