CEO, Ring20 Research and Support UK CIO
Talk title – TBC
Bio: Mum to David, 24 with Ring Chromosome 20 Syndrome, Allison co-founded Ring20 to address the needs of those living with r(20). She is co-lead for ePAG EpiCARE (ERN for rare and complex epilepsies), involved in various EURORDIS transversal initiatives and has affiliations with rare epilepsy communities in USA/Australia.
Allison is passionate about what can be achieved within the rare disease community believing all rare diseases should coexist ‘on the radar’ for clinicians, researchers, pharma/industry. The number of rare diseases is increasing as diagnostics advance, so we should ensure that the rate of therapeutic advancement keeps pace, to strive for equity for all.
Learn more about Ring20 Research and Support UK by visiting their website.