Speakers at RAREsummit19

 

 

 

 

Cambridge Rare Disease Network - RAREsummit19 | Speakers 1

Dr. Jonathan Milner

Co-Founder and Deputy Chairman of Abcam, biotech entrepreneur and CRDN Trustee

Cambridge Rare Disease Network - RAREsummit19 | Speakers 2

DAVID BULL

CSO of Duchenne UK

Sorry, no bio available as standing in at short notice 

Cambridge Rare Disease Network - RAREsummit19 | Speakers 3

Prof. Chas Bountra

Pro-Vice Chancellor for Innovation: Prof of Translational Medicine, University of Oxford

Cambridge Rare Disease Network - RAREsummit19 | Speakers 4

ALASTAIR KENT, OBE

Expert in policy development and patient engagement for health and medical research in rare and genetic diseases

Cambridge Rare Disease Network - RAREsummit19 | Speakers 5

Dr. Ana Mingorance

Chief Development Officer of the Loulou Foundation, the Scientific Director of the Dravet Syndrome Foundation Spain

Cambridge Rare Disease Network - RAREsummit19 | Speakers 6

Dr. Andy Richards, CBE

Digital Health Entrepreneur

Cambridge Rare Disease Network - RAREsummit19 | Speakers 7

Dr. Tim Guilliams

Co-founder and Chief Executive, Healx Ltd and Founding Director of CRDN

Cambridge Rare Disease Network - RAREsummit19 | Speakers 8

Elin Haf DAVIES 

Founder and CEO of Aparito, wearable tech to deliver patient monitoring outside of the hospital

Cambridge Rare Disease Network - RAREsummit19 | Speakers 9

Thomas Ogorka

Founder & CEO, Orphan Reach

Cambridge Rare Disease Network - RAREsummit19 | Speakers 10

Dr. Nicolas Sireau

CEO and Chair, AKU Society

Cambridge Rare Disease Network - RAREsummit19 | Speakers 11

Dr. Cecily Morrison

Researcher, Human Experience & Design Group, Microsoft Research Cambridge

Cambridge Rare Disease Network - RAREsummit19 | Speakers 12

Dr. David Brown

Co-founder & Chair of the Board, Healx Ltd

Cambridge Rare Disease Network - RAREsummit19 | Speakers 13

DR. GEMMA CHANDRATILLAKE

Education & Training Lead, East Midlands & East of England Genomics Laboratory Hub & CRDN Trustee

Cambridge Rare Disease Network - RAREsummit19 | Speakers 14

Steve Rees

Vice President, Discovery Biology, AstraZeneca

Cambridge Rare Disease Network - RAREsummit19 | Speakers 15

Tanya Collin-Histed

Chief Executive Officer, International Gaucher Alliance 

Cambridge Rare Disease Network - RAREsummit19 | Speakers 16

Neil Dugdale

General Manager – UK & ROI, Sobi

Cambridge Rare Disease Network - RAREsummit19 | Speakers 17

DR. JOANNA SEGIETH

Founder of Biosynetix Ltd, Rare Drug Development Solutions

Cambridge Rare Disease Network - RAREsummit19 | Speakers 18

Pete Chan

Head of Research & Analysis,
Raremark

Cambridge Rare Disease Network - RAREsummit19 | Speakers 19

Dr. Sarah Leiter

Medical Doctor Addenbrookes CUH, CRDN Trustee & Albinism Advocate

Cambridge Rare Disease Network - RAREsummit19 | Speakers 20

Dr. Paul WickS

Independent Consultant, Wicks Digital Health Ltd

Cambridge Rare Disease Network - RAREsummit19 | Speakers 21

ALLISON WATSON

Co-founder, Ring20 Research & Support; Dep EPAG Coordinator for EpiCAREUK

Cambridge Rare Disease Network - RAREsummit19 | Speakers 22

dr. gabriel recchia

Research Associate, University of Cambridge

Cambridge Rare Disease Network - RAREsummit19 | Speakers 23

Carina Thurgood

Founder & CEO, The Maddi Foundation

Cambridge Rare Disease Network - RAREsummit19 | Speakers 24

LAURENCE WOOLLARD

Founder and Director of On the Pulse Consultancy

Cambridge Rare Disease Network - RAREsummit19 | Speakers 25

Menna Hawkins

Polyposis Nurse Specialist, St Mark’s Hospital

Cambridge Rare Disease Network - RAREsummit19 | Speakers 26

Dr. DANIEL O’CONNOR

Medical Assessor, Medicines and Healthcare products Regulatory Agency, MHRA