15 / 100
WGC Conference Centre

Recorded talks and panel discussions from RAREsummit19

Listen to some of the key thought leaders from the day 

Dr. Jonathan Milner

RAREsummit19 Welcome Address
The power of a network to accelerate change

Alastair Kent, OBE

Keynote speech
Reflecting on 25 years; successes, challenges and hopes 

Baroness Nicola Blackwood 

We need a national conversation on rare disease

Dr. Ana Mingorance, Allison Watson, Tanya Collin-Histed, Carina Thurgood, Dr. paul Wicks

Patient groups partnering in the drug development process

DRUG Development PANEL Discussion

Disruptive Innovation & Transformation in the drug development process

Disruptive tech panel discussion. CHAIR: Dr. Tim Guilliams

 Disruptive technologies – Patients at the heart of AI

DR. G Chandratillake, M. Hawkins, DR. G. recchia

Co-creating genetic reports for non-specialists

Lawrence Woollard

Peer-led to get Ahead: Living with Haemophilia A

DR. Cecily Morrison & Dr. Sarah Leiter

Microsoft: Collaborative assistive technology design


Teams pitching:  Priorities for the future of the UK Rare Disease Strategy

RAREsummit19 testimonials

Summit attendees, exhibitors and sponsors share their thoughts on the day

Alan Thomas

CamRARE RAREsummit19 Testimonial by exhibitor,  Ataxia and Me

Jennifer O’ Kelly

CamRARE RAREsummit19 Testimonial by Summit sponsor, Amicus Therapeutics


Richie Head

CamRARE RAREsummit19 Testimonial by exhibitor,  Vision DMD

Abdullah Ihsan

CamRARE RAREsummit19 Testimonial by exhibitor,  Primary Ciliary Dyskinesia Family Support Group UK.

Emma McCorkell

CamRARE RAREsummit19 Testimonial, exhibitor and rare disease patient,  Genomic Laboratory Hub, CUH