Recorded talks and panel discussions from RAREsummit19
Listen to some of the key thought leaders from the day
Dr. Jonathan Milner
RAREsummit19 Welcome Address
The power of a network to accelerate change
Alastair Kent, OBE
Keynote speech
Reflecting on 25 years; successes, challenges and hopes
Baroness Nicola Blackwood
We need a national conversation on rare disease
Dr. Ana Mingorance, Allison Watson, Tanya Collin-Histed, Carina Thurgood, Dr. paul Wicks
Patient groups partnering in the drug development process
DRUG Development PANEL Discussion
Disruptive Innovation & Transformation in the drug development process
Disruptive tech panel discussion. CHAIR: Dr. Tim Guilliams
Disruptive technologies – Patients at the heart of AI
DR. G Chandratillake, M. Hawkins, DR. G. recchia
Co-creating genetic reports for non-specialists
Lawrence Woollard
Peer-led to get Ahead: Living with Haemophilia A
DR. Cecily Morrison & Dr. Sarah Leiter
Microsoft: Collaborative assistive technology design
HACKATHON PITCHES
Teams pitching: Priorities for the future of the UK Rare Disease Strategy
RAREsummit19 testimonials
Summit attendees, exhibitors and sponsors share their thoughts on the day
Alan Thomas
CamRARE RAREsummit19 Testimonial by exhibitor, Ataxia and Me
Jennifer O’ Kelly
CamRARE RAREsummit19 Testimonial by Summit sponsor, Amicus Therapeutics
Richie Head
CamRARE RAREsummit19 Testimonial by exhibitor, Vision DMD
Abdullah Ihsan
CamRARE RAREsummit19 Testimonial by exhibitor, Primary Ciliary Dyskinesia Family Support Group UK.
Emma McCorkell
CamRARE RAREsummit19 Testimonial, exhibitor and rare disease patient, Genomic Laboratory Hub, CUH