RAREsummit19

Emily Crossley

Co-founder and joint CEO of Duchenne UK

Moderated Panel Discussion: Patient groups partnering in the drug development process. Something for everyone?

Bio: Emily Crossley is the co-founder and joint CEO of Duchenne UK. She graduated from Oxford University with a degree in modern history and became a reporter and anchor for Channel 4 News and CNN International. After her eldest son was diagnosed with Duchenne Muscular Dystrophy, she set up the Duchenne Children’s Trust. The charity joined forces with Joining Jack and is now Duchenne UK.

Duchenne UK has raised £13 million in 6 years and has spent that money funding and accelerating the search for treatments and a cure for DMD. She helped to create the Duchenne Dash, an iconic 24-hour bike ride from London to Paris to raise money and awareness for DMD. Emily has advocated on behalf of patients around the world. She has represented the patient community in meetings at the EMA, the MHRA, the FDA and NICE. She has spoken at Parliamentary meetings and was praised in the House of Commons for the charity’s work, by the Minister for Life Sciences, George Freeman MP. She is a member of the MHRA patient group consultative forum.