RAREsummit19

Carina Thurgood

Founder & CEO, The Maddi Foundation

Moderated Panel Discussion:  Patients Partnering in the drug development process. Something for everyone?

Bio: Carina is the Founder and CEO of The Maddi Foundation, a UK based Charity that focuses on medical research for SPG15. She began this work after her teenage daughter, Maddi, was diagnosed with Hereditary Spastic Paraplegia. Since the beginning, Carina has dedicated her time to learn more about the condition, and with her strong fundraising drive has been able to help finance appropriate research projects; one of which is The Maddi Foundation partnering with SITraN at Sheffield University England.

Previously Carina was a successful businesswoman and a commercial florist working in some of London’s Top Hotels including the world renowned Claridge’s.