RAREsolutions – Rare Disease Day at Royal Holloway.
A poster competition with a conscience
change by design – let’s innovate!
RAREsolutions is an exciting poster design competition created for Rare Disease Day at Royal Holloway.
Life can throw up all sorts of accessibility challenges for those living with rare conditions. Check out the design challenge film by our RARE ambassadors Vaila, Eilidh and Elliot, people like you who want to live life to the full but are finding their environment makes that tough.
RAREsolutions competition closes in...
WHO CAN ENTER?
All students attending the Royal Holloway Rare Disease Day event 2021
1. Watch the challenge film
2. Will you fly solo or build a team?
3. Do your research
4. Create your entry on the poster template provided
5. Submit by Tuesday 20 April 2021
Judges will select a winning poster and runner up following the closing date. The main winner will receive a £50 voucher and the runner up a £25 voucher
Eilidh, Elliot and vaila invite you to check out their challenge film
Vaila, an architect, and her children Eilidh and Elliot show you around their village playground. Can you help make playtime more fun and accessible for both of them and other kids?
Find out more about Eilidh’s rare condition KAT6a and use this to guide you in your poster design.
Let your IMAGINATION run wild…
Remember the Ice Bucket Challenge that swept the world where celebrities Mark Zuckerberg and Tom Cruise had a bucket of ice tipped over their heads for a charity? Well, that was about ALS, a rare neurological disease which the late cosmologist Prof. Stephen Hawking lived with.
Or perhaps you’ve seen actress Liz Carr in Silent Witness? Did you know she has a rare disease called Arthrogryposis multiplex congenita or AMC and has been a wheelchair user since the age of 7?
How about Venus Williams, Missy Elliott and Warwick Davis shown opposite? Can you discover which rare conditions they have?
When you have a rare disease, the world and environment around you isn’t always accessible and conducive to living life to the full. Whilst some affected by rare conditions have fewer physical symptoms, others can be born with. or develop over time, physical or learning disabilities. But is it their condition that is disabling? Or the world around them?
Take Stephen Hawking, world renowned cosmologist, as an example. His rare motor neurone disease was diagnosed at 21 and he was given 2 years to live. It gradually paralysed him over the decades. Even after the loss of his speech, he was still able to communicate, initially through use of a hand-held switch, and eventually by using a single cheek muscle. He went on to live a full and active life to the age of 76.
People and companies around the world are helping to create accessible and inclusive solutions to everyday problems to help people live more independent lives.
There are over 8000 different rare diseases so added together there are around 3.5 million people affected in the UK, 35 million across Europe and 350 million worldwide living with a rare condition at some point in their life. And tragically many of those affected are children and die young.