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Cambridge Rare Disease Network - RAREfest20 | front page 1

Generously sponsored by 

Evolution Education Trust logo
Healx Logo
Illumina logo
Alexion logo RRfest20 sponsor
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SOBI logo
LifeArc logo

• 28 NOV 2020 • LIVE VIRTUAL  festival • 

•Available on demand til 29 Dec


RAREfest20: A FREE, VIRTUAL, interactive science, technology, advocacy and arts exhibition with a rare twist.  Visit exhibition stands, get involved with live demos, talks and panel discussions, view rare art, films, take the scavenger hunt challenge and more…

For the experts. For the curious. For all ages. For everyone. For free!

FREE to attend, RAREfest20 is a full day festival featuring interactive exhibits showcasing cool science, visionary technology and pioneering organisations, improving lives and bringing hope to those affected by rare diseases. 

In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.

RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above.  For a peek of what you can expect, head to our highlights, speakers and exhibitors pages brimming with cool companies, scientists, tech experts, health pros and patients taking part. 

 Open to the general public, patients, families, children, students,  healthcare professionals, researchers, companies. To everyone!

Help the rare disease community…

CamRARE partners with Eastern Academic Health Science Network to launch a ‘Rare disease insights survey’ to understand how innovation might help people with rare diseases.

One of the key priorities at Eastern AHSN is to support the development of innovations which improve the everyday lives of those living with rare diseases.

That is why they launched a new survey at RAREfest20 to gather insights from people living with rare diseases, including families and carers, so they can work with the innovation community to develop innovations to help solve some of your everyday challenges.

EAHSN innovation challenge RAREfest20


Heartwarming, uplifting and informative, the world’s first-ever festival on rare diseases drew huge crowds to the Guildhall over the weekend of November 30 & December 1, 2018.

Mike Scialom, Cambridge Independent Newspaper

The event was absolutely fantastic. It was obvious how much hard work had gone into it and gaining the balance between industry and public interest must have been a tough navigation, which was pulled off unbelievably well.

Steve Smith, Head of Rare Diseases & Gene Therapy

Lots of people we’ve spoken to today are passers-by. They’re out doing their Christmas shopping. That’s wonderful because it means the topic is broadening out to the wider community.

Harriet Gridley, No Isolation AV1 Avatar

We’re seeking sponsors.
DIscover how your company can be in the spotlight and support the rare disease community. New packages added this week!

“Be the change you want to see in the world”

Mahatma Gandhi

RAREfest20 Virtual Sponsorship Booklet[1]

Volunteer for #RAREfest20?

Be a  part of our thriving community

There are lots of tasks to do in the run up to and during #RAREfest20. Whatever your skills and availability, we’ll be able to find something to suit you. Come and join your tribe!

If we all got involved, imagine the difference we could make? Don’t just follow us, interact with us and join our thriving rare disease community! There’s lots of ways right here to begin your journey with us…