• 28 NOV 2020 • LIVE VIRTUAL festival •
•Available on demand til 29 Dec•
WHAT IS RAREFEST20?
RAREfest20: A FREE, VIRTUAL, interactive science, technology, advocacy and arts exhibition with a rare twist. Visit exhibition stands, get involved with live demos, talks and panel discussions, view rare art, films, take the scavenger hunt challenge and more…
For the experts. For the curious. For all ages. For everyone. For free!
FREE to attend, RAREfest20 is a full day festival featuring interactive exhibits showcasing cool science, visionary technology and pioneering organisations, improving lives and bringing hope to those affected by rare diseases.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
Help the rare disease community…
CRDN partners with Eastern Academic Health Science Network to launch a ‘Rare disease insights survey’ to understand how innovation might help people with rare diseases.
One of the key priorities at Eastern AHSN is to support the development of innovations which improve the everyday lives of those living with rare diseases.
That is why they launched a new survey at RAREfest20 to gather insights from people living with rare diseases, including families and carers, so they can work with the innovation community to develop innovations to help solve some of your everyday challenges.
WhAT DID VISITORS THINK OF RAREFEST18?
Heartwarming, uplifting and informative, the world’s first-ever festival on rare diseases drew huge crowds to the Guildhall over the weekend of November 30 & December 1, 2018.
The event was absolutely fantastic. It was obvious how much hard work had gone into it and gaining the balance between industry and public interest must have been a tough navigation, which was pulled off unbelievably well.
Lots of people we’ve spoken to today are passers-by. They’re out doing their Christmas shopping. That’s wonderful because it means the topic is broadening out to the wider community.
WOULD YOU LIKE TO
Volunteer for #RAREfest20?
Be a part of our thriving community
There are lots of tasks to do in the run up to and during #RAREfest20. Whatever your skills and availability, we’ll be able to find something to suit you. Come and join your tribe!