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RAREfest20 speakers

Keep checking back…there are more to incredible speakers to come and detailed speaker pages on the way!

RAREfest saturday speaker Giles Yeo


Principal research associate, MRC Institute of Metabolic Science, author, BBC presenter

Melita Irving

Dr Melita Irving –

Consultant, Clinical Genetics, Guy’s and St Thomas’ NHS Trust, author

Adam Pearson

Adam Pearson –

Actor, presenter, speaker, owner of a rare disease and disability rights campaigner

Dana Cookies for Cures RAREfest20


Founder, Cookies4Cures, raising funds for rare disease research one cookie at a time

Onno Faber

Onno Faber –

Entrepreneur, public speaker, rare disease patient, Founder & Chairman, AllStripes

Lucy McKay

Dr Lucy McKay –

Founder and CEO,


Dr Jenny Dickens

,DR Jenny Dickens –

Clinician scientist, respiratory consultant. Addenbrooke’s, Royal Papworth, CIMR

Prof Stefan Marciniak

Prof Stefan Marciniak

Prof of Respiratory Science, Cambridge Institute for Medical Research (CIMR)

Kat Arney RAREfest20

Dr Kat Arney –

Science writer, broadcaster, public speaker. Founder, First Create The Media

Maria Picone TREND Community RAREfest20

Maria Picone –

Caregiver, Co-Founder and CEO, TREND Community

Graham Miller Photohonesty RAREfest20

Graham Miller –

Photographer, founder, Really Real Resources 

Georgina morton Archangel MLD Trust RAREfest20

Georgina Morton –

Founder and Chairperson of ArchAngel MLD Trust

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