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RAREfest20 speakers

Keep checking back…there are more to incredible speakers to come and detailed speaker pages on the way!

RAREfest saturday speaker Giles Yeo

Dr. GILES YEO –

Principal research associate, MRC Institute of Metabolic Science, author, BBC presenter

Melita Irving

Dr Melita Irving –

Consultant, Clinical Genetics, Guy’s and St Thomas’ NHS Trust, author

Adam Pearson

Adam Pearson –

Actor, presenter, speaker, owner of a rare disease and disability rights campaigner

Dana Cookies for Cures RAREfest20

Dana PERELLA

Founder, Cookies4Cures, raising funds for rare disease research one cookie at a time

Onno Faber

Onno Faber –

Entrepreneur, public speaker, rare disease patient, Founder & Chairman, AllStripes

Lucy McKay

Dr Lucy McKay –

Founder and CEO,

Medics4RareDiseases

Dr Jenny Dickens

,DR Jenny Dickens –

Clinician scientist, respiratory consultant. Addenbrooke’s, Royal Papworth, CIMR

Prof Stefan Marciniak

Prof Stefan Marciniak

Prof of Respiratory Science, Cambridge Institute for Medical Research (CIMR)

Kat Arney RAREfest20

Dr Kat Arney –

Science writer, broadcaster, public speaker. Founder, First Create The Media

Maria Picone TREND Community RAREfest20

Maria Picone –

Caregiver, Co-Founder and CEO, TREND Community

Graham Miller Photohonesty RAREfest20

Graham Miller –

Photographer, founder, Really Real Resources 

Georgina morton Archangel MLD Trust RAREfest20

Georgina Morton –

Founder and Chairperson of ArchAngel MLD Trust

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