How do we start this conversation?
Rare disease mum
Vicky Donald is mum to Holly, who has Neurofibromatosis type 1 (NF1). Holly and Vicky recently featured in Rare Revolution Magazine’s Rare Cancers issue with documentary photographer, Graham Miller, Founder of Really Real Resources. Graham followed Holly’s year long journey with chemotherapy as part of his Light from Dark project which brings rare conditions to the forefront through really honest photography.
Vicky will join a panel of other speakers led by Adam Pearson to engage in an honest discussion about living with rare conditions and how to start the difficult conversation about rare disease and disability. How do we finesse the art of starting, maintaining and finishing conversations about complex subjects?